Lobular Breast Cancer Just Diagnosed

 Hi Netty

Chemo isn’t a picnic but as most will agree it’s doable. With no complications it’s a few days of feeling under the weather/not eating etc then you pick up again. I went to centre parcs in the middle of mine. It’s easy to say but try not to worry. Take it one day or one appointment at a time.  Take care of yourself and good luck with it all.

love

Helen x

Hi Helen, 

Thank you for your kind message. Fingers crossed that I can get through it too whatever my treatment plan is. 

I am feeling positive now better than I was and this community really helps. 

Love Netty xx

Morning Roses123

Good luck with your results today. Fingers crossed this isn't as bad as you fear.

Do let us know how you got on and ask whatever questions or concerns that pop into your head after you get back home.

Hugs, G n' J

Hi again Roses123,

Good Luck for today, I will be thinking about you and have everything crossed for you. Pls let us know, we are here for you,  no matter what.

Netty113,

Radiotherapy is mostly easy, not for everyone I know, however,  you will spend more time getting changed out of your clothes and back again and being put in exactly the right position than you will in treatment. If you moisturise 2-3 times a day (I had E45 cream) and used a non perfumed shower gel etc as I did I used sanax. I bought La Roche-Posay Cicaplast as it was recommended on here. I used it after radiotherapy had finished as it’s a repairing balm, i have surgery scars from my mastectomy So was worried it would blister, it didn’t tho, it’s not the cheapest cream, but I had no redness, no sunburnt look, Infact my skin didn’t even change colour, I was lucky I had no pain or problems at all.

Everyone is scared of chemo, more specifically the side effects of chemo, I’m hoping you don’t need it, however I must admit now I have been through it I’m glad I did have chemo.

I had the choice, my oncologist was keen for me to do mainly due to my age he said and as a precaution. Obviously everyone’s cancer is personally to them and it can depend on age, other conditions you may have and your general health.

Sending both of you Gentle Hugs x x

Aww bless you Beachwalker19. Thank you so much for the advice and reassurance. 

You are all inspiration to us newbies on here and I am grateful to you all for the support. I meet my oncologist next Thursday so I hope to have an idea of where I am heading. 

I have had more dramas this morning as I had to go and see my GP and who told me to go straight back to my hospital to see my breast care nurse. In fortunately my hand on the surgery side has swelled and is painful due to an IV antibiotic drips being put in that hand and I have irritated vein. GP and BC nurse not happy as they shouldn’t have put a drip in my on my surgery side. Got cream to ease pain and got to elevate arm above my heart.  It just seems to be all happening to me as I got an infection and hematoma after my first surgery which resulted in a second surgery.

hopefully no more set backs for me next week fingers crossed. 

Love Netty xx

Got my results yesterday from my MRI and they found two more areas of concern one 3cm above the sight of the 1.6cm that has already been removed and 2cm below.  The consultant can't be sure it is cancer she said one does look like it is and one might not be.  I had the option to go in and have lumps removed and tested but if they are both cancer I would need to have a mastectomy.  I have decided to have a mastectomy straight away on the 9 October.  Had a scan on my lymph nodes which they say seem ok but have had a needle biopsy.  My friend wrote everything down what was said on a note book and  she wrote treatable and make better but  I am really scared. I want to be here for my two girls.  I have told my girls  and have been positive with them.  One is daughter is at uni and the other is at home with me but she has been very quite today and has put herself to bed this afternoon! .

The mastectomy sounds like a good idea. Tough decision to make though so well done. Your girls will be ok. They will pick up on your strength and be strong for you. Treatable is a good word to hear. And we are all here for you should you need us. Take care. X

Hi Roses,

Aww bless you and I am so sorry to hear this news. But if it was me I would do the same as you and say ok take it away and try to deal with that part  as it’s better to reduce your risks now. Well done for getting through that part on Friday. 

Try not to worry about your girls they will cope once they get over the shock. Cancer is very cruel as it hurts our families and friends too.  So glad that you had your friend with you at the MRI results as I had been thinking of you. The main thing is you are getting sorted and will be well again soon.

You are one very brave and amazing lady. 

Love Netty xxxx

Hi Roses,

I had a double mastectomy even though my cancer had been treated and no more cancer cells could be found. 

For me it’s been reassuring that I don’t need to worry when mammograms are due. The worry over waiting for results each time would be too stressful. 

Its a big decision though so take your time and talk to others and your doctors.  Also consider if you want reconstruction as the surgery is major. 

Whatever you decide there’s lots of help and support out there, make sure you take it. 

Wishing you all the best. xx