Hi all I had my diagnosis of lobular her2 breast cancer today . I thought I was prepared for the results but it hit me like a steam train . I told my children. And called my partner (who works away). I am now waiting for an MRI and ECG maybe a CT. To be honest I am worried that it will take weeks to actually start treatment. What are your experiences. Thanks
Hi Sandra /
Warm welcome to the club no one wants to join, so sorry to read you too have been hit by 'the train' :-/
We always likened it to a rock being lobbed into a lake and you have to ride out the many ripples - Family, work, treatments, finances, anger, worry etc...
The waiting results and starting treatment period seems to take forever; everyone hates this time so what you are going through is totally normal.
Chances are this has been growing for quite a while (most are slow growing) so another couple of weeks getting a treatment plan started won't mean this is spreading and growing out of control as your brain is probably telling you.
The MRI or CT scan and ECG are standard prior to getting your plan arranged - They are not looking for spread (although this can show up) it is to check out your heart, lungs, liver and kidneys etc to see if there is anything that could interfere with surgery or chemo (like finding you only have one kidney etc)
Most are given surgery first then chemo if needed but it can be the other way around.
Have you family and friends around you to call on if you partner is working away - Maybe something can be arranged where he can work nearer to home while you ride the roller coaster ?
Take everything one step at a time, just concentrate on the next few days rather than taking in 'stuff' you may not need to know for weeks as yet. Another thing you could do when you know what is going on is notify any schools your children are at in case it affects them emotionally while they are there.
J was HER2+ as well and it can be a lengthy treatment period - This was in 2012 and she is still classed as NED no evidence of disease so hang onto that thought 
Do also post in the main breast group at times if you need answers, it is busier than this group; although worryingly there do seem to be more younger people diagnosed with BC now which is why this group was set up.
Oh! btw... Try to stay clear of Dr Google, a lot of the info out there (especially regarding her2) is way out of date and worryingly misleading. Stick with sites like Macmillan, Breast Cancer Care and Cancer Research UK. Treatment for HER2 has come on leaps and bounds in the last few years with game changing targeted therapies.
Hope this is of some help, good luck with getting your plan into action soon, G n' J
