Hi everyone - I am new to this forum and looking for some advice please.
I have just completed radiotherapy and have started taking Tamoxifen. Having been diagnosed at 33, I was keen to understand what symptoms I should be conscious of that might indicate secondary cancer. My oncologist just told me to be aware of my own body - but I wondered whether anyone had anything more definitive?
I don’t want to think every single little niggle is Cancer coming back, but I also want to be able to be proactive in the bad event that it does.
Thank you
Hi
Warm welcome to the club on one wants to join, but pleased you found us.
Fear of secondary breast cancer, or recurrence is something everyone diagnosed has post treatment. It's only after you step off the treatment roundabout your mind has other things to think about instead of appointments.
There will always be days you get a twinge or pain which triggers your worry wart; the hard part is trying to live your life with some sort of normality but recognising the signs that could be more than joint pain from Tamoxifen, a cough or a normal stress headache etc
You can check out this link 'Signs & Symptoms of Secondary Breast Cancer' but don't dwell on it and worry unnecessarily....
My wife was treated for HER2+ BC in 2012 and over time you learn that it is ok to buy green banana's if you get my meaning
Hope this is of some help - We always said 'Don't miss today's sunshine worrying about tomorrow's rain'
Take care, G n' J
BTW, there is a Main Breast Group here you could also join that is very active and has loads of ladies post treatment living the new normal and also a Life After Cancer Group.
Hi Charlicat3
I am 6 weeks post Radiotherapy and am taking Tamoxifen, I have no side affects all day but I can wake up at 4am and struggle to get back to sleep, sometimes I wake up sweating profusely and other times I sleep like a baby!
My oncologist said it will settle down and I believe it will. I hope it works out for you, I don’t want to sound all negative I honestly think it’s a side effect I can cope with in regards of what good the drug is doing for me! (All bar washing my bed sheets constantly!).
hope this helped xx Take Care Charliecat3 xx
Hi ,
Firstly, Welcome to the site.
Its nearly a year for me since diagnosis and Im being as positive as I possibly can be and I’m determined not to think about recurrence or at least do my very best as I keep telling myself to live my best life everyday and I will not have a cloud hanging over me.
And similar to what Dreamthief said I say “Don’t let the fear and worries of tomorrow rob you of your joy today.”
It’s sensible to address any concerns with your Breast Nurse or GP.
Sorry not much help.
x x
Hi all
Thank you all for replying - all your comments were hugely helpful and made me realise I’m not alone out there. The link also led me to a printable card with signs and symptoms which is a great thing to have on hand when that niggle happens at the back of your mind! Hopefully it will go some way to stop that constant ‘what if’ feeling....!
I’m still waiting to see what Tamoxifen has in store for me - gingers crossed not much!
Charliecat3
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