Newly diagnosed

Hello West End Girl

That's the question we all ask our selves but you're in the best place and i'd like to give you a warm welcome. This place was a life saver to me when last year at the age of 47 i was diagnosed with breast cancer (mine was triple negative) a 6cm tumor that i didn't even know i had. It was found on a routine mammogram. 

I am now cancer free and back at work. 

Its a bit quiet in here so please also go introduce yourself in the Breast Cancer Group there are more people who go in there so i'm sure there will be someone who will answer your question. 

Please feel free to rant, cry and shout if you find it necessary, we sometimes have a laugh too. So pull up a chair and make yourself comfortable. You'll get through this just like i did.

Take Care xx

Thank you

Hi West End Girl, 

I also had quite a large tumour, no other symptoms however mine was hormone receptive so was fuelled by me taking the pill. EC positive but Her2 negative.

If you have any questions ask your Breast Nurse, they are there to help you as much as they can. 

I also had Bone scan and abdominal and chest ct’s and a heart scan. The waiting is awful I know. 

Just please be assured your care team will come up with a plan which best suits you. To us it’s torture waiting but to them it’s about getting a full picture to plan your treatment with the best possible outcome for you. 

Keep in touch, let us know how you get on x

Thanks Beachwalker19. Did they tell you that the Pill had fuelled it? I also wonder if that could be me. The practice nurse at my Docs advised me to stop taking it now. I will feel guilty if it has contributed but then it has suited me for many years so you can't change the past hey? Got CT scan tomorrow and hoping it might finally be results day and not have to wait another weekend. Hope you're doing well now. 

Hugs xx

I will let you know xx

So yesterday I got some results back - my bone scan was normal so good news! My HER2 came back positive, so I will have chemo first before the op and I'm seeing the oncologist on Tuesday to discuss. I know that means it's more aggressive but I am kind of reassuring myself that maybe this means it has grown to the 5cm size quickly so it hasn't been lurking for a long time and I found it as soon as I could have done. My nurse said that both hormone receptors were also positive and she said that was good. When I asked why, she said because I will then probably take hormone suppressants for the next 5 years and this means a good chance that it won't return. I also had a CT scan yesterday and will get those results on Tuesday too. As long as I find out that is also clear, I will feel then that at least I know what I am dealing with. 

I am surprised that I actually feel quite upbeat. Maybe I will be scared once I go to start the chemo and maybe a little worried how poorly it might make me feel, but at least now I feel like things are starting to happen and we are going to get this sorted.

xx

Hi West End Girl.

( Great name!)

I thought I would get back to you, because we are both the same age ( I am 46) -  and starting this business, at roughly the same time.  I had a lumpectomy a few weeks ago, but because there was more cancer than expected, I am going in for a bi-lateral mastectomy in September.   I can't believe how terrified I was about the lumpectomy - which actually proved much less of an ordeal than I had built it up to be, and now I find my self going in for a real whopper of an operation!  I MAY have curve-balled chemo, but not sure yet.

Two months ago, I was living in blissful ignorance.  There is a lot to take in, in a short space of time..  

Like you, - although I have moments of feeling sick, - I do feel better that things are now on the road to being sorted.  Nothing is as dreadful as that time when you don't know and you are waiting.   

Good luck with the next few weeks. Keep in touch.   We will get this!

Love from 

Sukki 17

Thanks Sukki, things do happen fast but I know that's a good thing!

Good luck with your operation

xx

Hi, li have recently been diagnosed with grade 3 stage between 2 + 3 oestrogen receptor positive and hert 2 3+. I have had a lumpectomy and lymphnodes clearance which identified 6out of 9 macro metastases. I am a waiting further surgery next week for more tissue removal. Followed by chemo, radiotherapy and hormones.

I am now ready for treatment to get started so I can complete and move ion with my life. I h e my wigs and hats at the ready. My point is it will be a long journey but there is light at the end and we all need to remain positive. Please do let me know how you go. I am 46 years old.

Hi West End Girl, 

I was sure I had replied to this, but my iphone doesn’t seem to let me do much on here atm.

My nurse just said as it’s hormone receptive it would thrive on the pill as you are basically feeding the tumour. 

Glad your Bone scan was clear. How did the appointment go with the oncologist yesterday, I hope you’re ok.

It is a pretty long road but we are all here to help in any way we can, we are with you every step of the way.

Sending Hugs, Tina x x