Struggling to get a diagnosis

Hello  first let me welcome you to the community no one wants to be a member of, but it is the best community for support and advice.

I have no experience of Paget's disease but i would say you need to keep on at this. Even if it is just to give you a piece of mind.

Is there any chance you can get an appointment with the junior member again and ask them to refer you to the breast care clinic?? 

If not i'm wondering if you can self refer and ask for an appointment at your breast care clinic yourself. 

Unfortunately a few of us know that you don't have to be over 50 to get breast cancer, have you rung and spoke to Macmillan? they may be able to give you some advice to get this looked at.

You can contact Macmillan 7 days a week from 8am - 8pm 0808 808 00 00 

Something else you could try is posting in the Main Breast Care Group there are more people in there who will respond to your question.

PS No apologies ever needed, were here to help xx

excellent advice from

I had breast cancer that was only diagnosed post surgery and I'd opted for a full mastectomy rather than a nipple sparing one because of a slight twinge between my nipple and my arm pit.

it turned out I had Paget's of the nipple so just as well I sacrificed it, none of the medical staff had raised it as an issue, I'd never heard of it.

nobody is too young, the GPs are sticking their head in the sand and you need to drag them into the real world. 

Cancer is always more treatable and curable if caught early.

Get the young guns to refer you, if nothing else for peace of mind. 

hugs

Carolyn

xxxx

AND

a lot of people believe cancer is not painful

I can tell you it jolly well can be.

more hugs

Carolyn

xx

Hi,

I was was diagnosed with Paget’s disease at 41. I noticed a really small red line around half of my nipple and it looked a bit flat. My GP said that he wasn’t worried at all, but would refer me because they refer on all changes.

At the breast clinic, the surgeon examined me and said that she couldn’t find anything obvious, but I should have a mammogram to check. That’s when they found the small lump (11mm). The biopsies of the lump and nipple both came back as cancerous, but I still had breast conservation surgery as they were close together.

I don’t mean to worry you as I’m sure more often than not, rashes are harmless, but if it is causing you distress, then I’d be tempted to either go back to the GP or depending on your finances, you could go to a private hospital.

Best wishes,

Sarah