Doing this on my own.

I'm sorry you have no support. I'm a newbie to this journey so hopefully one of the other ladies maybe able to offer some advise. Is there any day centre's near you maybe? X

Hi KMS70

Welcome to the online community. We are a friendly bunch who understand how you feel and are here for you whenever you need. Hopefully you won't feel so isolated from now on.

I had breast cancer treatment in 2016 when I was 47. I live alone and my daughter, who lives nearby was my main source of support. My other family are miles away. I found this site part way through my treatment and have found it to be a great source of support and help. That's why I stick around now - I'm deeply indebted to all the wonderful people here who helped me.

There's a link here to the In Your Area section of the site where you can search for support groups by postcode. I have to say, I did have an allocated Breast Cancer Nurse but she wasn't very helpful in terms of suggesting support - the breast physio I saw was much better at that and I have found that there are lots of things that I can access that I would never have known about if it weren't for her and this site.

Have you looked on your hospital's website? I was quite surprised that mine had a range of groups and services for cancer patients which the breast clinic had never told me about (don't get me wrong - my unit were great and looked after me well, they just don't give information about these other services)

I also thought I'd let you know we have a main Breast Cancer group which is somewhat busier than this under 50's one. Feel free to use them both, lots of us do. Though it may be a little late - we have a chemo club thread there which is a place for everyone having chemo to share tips and experiences and just get a bit of solidarity, really.

Well done on getting through 5 rounds of chemo - no mean feat. Wishing you more good days than bad on the rest of your treatment!

R

KMS70

Well you are no longer doing it on your own.  It might be in a virtual way but now you have an amazing supportive and caring bunch of fellow BC friends

I use several threads on this site and have found great support at all times of the day and night. The 'awake' thread posters never seem to go to sleep 

Go have a good look you are bound to find like minded people.

This is my 2nd time for BC. The first time I did not know this existed I wish I had.My local hospital is totally the other end of the country to you, but it had a list of groups I could have joined.

Take care

Leolady - off for a 3rd attempt at removing the tumour tomorrow. So I wont be posting but hope to hear from you when I am.xxxx

Hi I’m in East Lothian so I attend the western too. I’m finished my chemo but waiting to start my radiotherapy. Have you been to the Maggie’s centre for support?

Hi KMS70

Do you have a local Maggie's Centre near you? The one in Forth Valley is fantastic, very friendly & lots of complementary therapies on offer as well as financial & nutritional help. I have met a lot of people going through the same journey which has really helped me. Jo xx

I understand how you feel my family arent interested in making the effort to check how i am. I only have my carer for su0port. But ive found being on here makes up for my family not taking an interest. We are all here for you. We may not be with you but we understand what your going through. There may be support groups in your area? Ive looked on the macmillan website for them. You can ask macmillan to provide someone to come and chat with you. You really arent alone x

Thank you Ronstar.  I think maybe I should have posted much earlier on these groups as it has been really uplifting that so many people are out there with such varied experiences yet so very supportive of each other.  I very much sat on the sidelines feeling sorry for everyone else that was having a tough time but battling on silently myself.  Not the best plan :) but I know better now and will definitely get more involved in the group as this virtual community suits me down to the ground.  Thanks for opening the door :) xx

Thank you.  I was not expecting people to respond, to be honest and it has been really uplifting.  I should have got involved earlier so thank you for taking the time to respond.  I really do appreciate the time you took to do this.  Wishing you a speedy recovery. 

I am so sorry you have this for the second time Leolady. I do hope they remove the tumour this time and I thank you very much for taking the time to respond when obviously you are so very poorly yourself.  Sending you lots of positive energy and thank you very, very much for taking the time to respond to my post. I was not really expecting anybody to respond but it has been really lovely to feel part of a group.  Wishing you a positive outcome...  x

KMS70 sorry to hear that you've been feeling isolated at times, i have some experience of that as majority of my family and closest friends are hundreds of miles away, and my more local network all have their own busy lives and jobs when at home alone during treatment etc, so i do get the isolated feelings. 

I too will be making visits to the western soon, i see their website mentions a reach for recovery support group for bc and also a chemo support group, but i see you are hopefully coming to the end of your chemo, however this site has been great for at least having people to listen to my thoughts where and when required, they are always here, and i can discuss how i feel etc far more than i can in real life.