Stage 1 Breast cancer recurrence

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Im 42 years old. Last Sep (24) I had a lumpectomy to remove a 19mm lump. Pathology report after the surgery confirmed. Its a grade 3, stage 1 multifocal IDCS. Oncotype DX score was 18 (5% chance of recurrence in the 7 years and 1.6% benefit from chemo) and clear margins and no lymph nodes involved.

I had 15 rounds of RT and on Tamoxifen. Doctors didn't expect a recurrence. I had my annual mammogram in Sep 25 and it confirmed I have extremely dense breast. But they said they cant see anything other than the scar tissues. 

A week ago I felt some abnormality in my armpit and thought of getting it checked. Did an ultrasound and they confirmed there is nothing in the armpit. But the radiologist said there are two things that she could see right near the scar tissue and she said she couldn't see it in the previous USS. So she did a biopsy. Report came back as malignant leave the whole MDT surprised. I did a PET CT scan this week and I have my surgery next week to do a mastectomy.

Just when I thought Im one year on remission my life just fell apart. 

Just like to see if anyone has seen stage 1 cancer recurring in one year as I cant find an answer as I was on treatments and did a whole life style change to my diet etc. My oncologist even told me Im a model patient. Don't have words to explain how disappointed Im about life.... !

Thanks.

NK

  • Hi  

    I’m Anne, one of the Community Champions here on the Online Community and I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    It must be extremely disappointing to get a recurrence so soon after you'd finished treatment and I know it's something we all dread. 

    While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Wishing you all the best with your surgery next week.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • I’m sorry to hear this. Just wondering, did you take the chemo? You only mention radiotherapy and tamoxifen, was that all that was given a year ago? Local recurrences are rare but better than distant mets, the risk of which is low on that oncotype score xx 

  • Thanks for your reply. I didn't have chemo. They said because its stage 1 with a Oncotype score of 18, there is only a 5% chance of recurrence and 1.6% benefit in getting chemo. They said it would do more damage to my body rather than any good