10 months

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OK, I am now just over 10 months on this crap path.

Still trying to navigate it, still struggling if I'm honest. I don't cry as much. I still cry everyday, morning still are hard. Sleep still over the place. I still volunteer but like everything it's hit or miss. Tried indoor bowling don't think it's for me. Lost most ( if not all) of my friends.  I go to bereavement coffee morning.  At 57 finding it hard to find people my own age or my new tribe,  I don't have the confidence in myself or other people. 

I am not suicidal, but my hope is I will catch up with my wife. I see or read other people moving on better than me, which puts me in a spin. Then I have to remember we are all different and handle grief differently, there is no wrong or right way. I am so lost at the moment, but that's naturally.  I'm sorry about the ramble I was hoping writing this might help. 

  • Jealousofangels,

    A lovely poem, I hope you're therapy goes well, and you find some peace. 

  • I am not suicidal, but my hope is I will catch up with my wife.

    Yes, I get that. My wife died over two years ago, and I am still totally lost.

    I know that I have a responsibility - indeed, a duty - to make full use of the life I now have, in loving memory of my dear wife. And I fully intend to try my best to do that. But still - I wouldn't be sorry if I didn't wake up tomorrow ...

    I see or read other people moving on better than me, which puts me in a spin.

    I have had the same experience. But if I can offer one single observation on that: never compare yourself against others. As you go on to say, we are all different.

    I have personally found it helpful to discuss the death of my wife with other people who have lost their own partners. Sometimes, such people can offer unexpected perspectives; and, sometimes, they are much further down the road of adjusting to their new situations than I currently am, or will likely ever be. But I never beat myself up about that: I am me; the relationship which I had with my wife was unique to us; and there are no easy answers.

    I wish everybody here all the very best.

  • Thanks for that Chris, how right you are in everything you say, it sounds exactly like my life, I couldn't have written it better myself, grief is the loneliest place on the planet.

    I am so desperate for counselling, therapy, anything to help me through this, it's only been 4 months for me & I waited a month for 'Talking Therapy' to get back to me for an assessment only to be told I hadn't been grieving long enough for them to help, if after a year I am depressed or suicidal they can help them me then. I am looking for one to one, face to face & here im Cornwall it is so hard to get help. I've tried Cruse but it's all online. 

    Andrew & I were together for 25 years & he was everything I did & everything I was, the last two weeks of his life we were both mentally & physically exhausted, we said things we didn't mean, we were fighting the cancer I know but it was us each other we were directing it at. I feel so badly that I let him down & it's just an added thing on top of the devastation of losing him. 

    Sending love to all xx 

  • Yes, the feeling of being alone is horrendous, and I am sorry you are in this terrible pain. The feeling of guilt is a complex one. In my situation, I remember shrieking like a fish wife at him, to please go to the bloody doctor’s. He wouldn’t go for three months, and we had the most horrendous rows about it. He insisted it was Long Covid, but my instinct’s told me it was not. I also felt guilt that I wasn’t there when he died. I had stayed over night the previous night at the hospice, and needed to go home and shower. I specifically asked them to contact me, if his condition changed. They didn’t, I had a phone call instead. I felt terrible, as I hadn’t been there at that moment. Apparently, it is quite common for that to happen. To balance things, I know in my heart that I gave everything I had, in caring, loving, supporting him. I had no more to give, and I was totally exhausted. I am sure you did, too. It was our Wedding Anniversary today, it would have been 37 years married. I had planned to take a flower arrangement to where my darling is buried. Instead, the washing machine started smelling of burning. So, I have spent the day arranging for a new one to be delivered, the old collected and disposed of. What a bizarre day ! JoySending hugs to all, Kate. Xxx

  • Thanks for your reply Kate, yes the guilt thing is hard to navigate as he is not here to say, ‘stop over thinking’ something he was always telling me off for. I was with Andrew everyday for the last two weeks as he had a back pain & diarrhoea, it took its toll mentally & physically for both of us but the night before he passed he said he wanted to go & see his Mum, a 150 mile road trip, I was so happy that he felt able to go out at last, I left him in the morning for a couple of hours, he was sat up on the sofa when I left & when I got back he had passed away asleep on the toilet bless him, I could see he had tried to get up, I think his back pain was probably a tumour, luckily he was mobile until the end as that was his worse fear, lying in bed, dying, full of drugs. He went out the way he would have wanted to but the guilt of leaving him is so awful. I certainly did give him my everything & would do it again. We had a crazy, wonderful life & I miss it so very much. 
    Maybe the broken machine was to take your mind off the day. Strange how things are sometimes HuggingHeart️

  • Yes, it is. My Paul would have just laughed at it all. We managed to care for Paul at home for five months. Our adult daughter and son are still at home, so they were able to help with meds, support and practical things. We ran it on a 24/7 system, as Paul had terminal agitation, and we had to keep an eye on him the whole time. I would lay on the bed for a five minute break, and he would be up trying to get down the stairs. In the end, I had to put a heavy chair at the top of the stairs to buy me some time. He was a terror. 

    I am sorry you are having to wait so long for counselling. I managed to get some from the hospice after three months, in a group session. It did help to a degree, even if only to meet other people who were going through the horror. 

    I know what you mean about missing your wonderful life together, it is a cruel, cruel disease. Sending hugs, Kate. Xxx

  • Dear Aunty Debs,

    I can feel your pain. I grew up in West Cornwall, am now living in the Highlands of Scotland. Both rural areas, both stunningly beautiful areas  but with their own problems. I do not know if these will be of any help to you, but I have come up with the following which may be of use to you............ 

    Cruse

    https:///www.cruse.org.uk/get-support/. Not just online, but also telephone support, on  0808 808 1677. Hours Monday, Wednesday, Thursday, Friday – 9.30am – 5pm, Tuesday – 1pm – 8pm. They are very good, not just for immediate support, but also for  giving info on groups in your area which can provide support;

    If you are feeling desperate, unable to go on, please call Samaritans on 116 123. I am not ashamed to say that they saved my life twice earlier this year. They listen, 24 hours a day, do not judge. Just understand, just help.

    www.cornwallhospicecare.co.uk Currently holding 2 hour drop in sessions at Ladock, (approx. 6 mile N/E Truro) , Hayle, Redruth, Launceston, St Dennis and St Austell. Check website for details

    Upcoming bereavement events

    https://www.cornwallhospicecare.co.uk/events/category/community-services-events/bereavement-help-point/ 

    Also

    https://www.facebook.com/cornwallbereavementnetwork/

    Please, do not feel guilty about anything.. Cancer is a B**t**d disease. It takes the one you love in the cruellest of ways, It make you feel guilty - for everything you said, and didn't say, everything you did and didn't do.

    It hits you multiple times, over and over. Something my counselling is now helping me to realise - I did the very best I could do, better than the hospital could have done. I LOVED Anne, right to the end. I could have done NO more. So why doesn't it feel I did enough?!

    My counsellor has said - Its"  the head and the heart"...... The Head says you couldn't have done more. The Heart says "I didn't do enough". I suppose we will always feel grief, guilt. Even though there is nothing more we could have done. Deep down we know it, but......... "what if ???"  always hits us. Even though we could have done no more.

    I am heading down to West Cornwall (near St Ives) for  Christmas with my (very) elderly parents next week - if you would like to meet, for nothing more than a coffee, please drop me a message (I know we cannot put personal details / messages here, and I understand why, but if you want to, let me know - i m sure we could work something out.)

    Chris

  • Ive had a similar response over counselling, its too early yet they say.(9 weeks).

    Like a few of you here, I was Tonys sole carer almost right to that last few days

     His CHC funding kicked in the day he died. 

    The issue of getting carer in was raised a number of times as the hospice could see how exhausted I was, but I felt and said, caring for him was the last thig I could do for him. And I would di it again in a heartbeat.I was sleeping on the settee for the last 6 weeks with an occasional respite night from the hospice. He also went downhill quickly in the last 2 days, he was begging to die. I cant unsee or unhear that. 

    Im having a pretty crap time too, chrustmas I think doesnt help.I went to buy my dad a card as he is on his own, but the first cards in the line were Husband, and that left me running out in tears. Yesterday I sobbed in the bank for 1.5 hours as they have made one huge cock up over our joint account.. to cut a long story short, we had different names but instead of just taking his name off, they have changed the name to my initial but his surname, a person that doesnt exist. Then they asked me to prove I was ever an account holder (its online!!). I have made an official complant but its just extra stress you dont need. 

    This morning Im seing my boss about going back work, i was sure I was ready, now not so much.

    Keep talking everyone. It helps xx

  • Chris, the guilt, grief and the what ifs, sums me up perfectly. 

    I have talked to my Doctor, counsellor and even a vicar, they all say the same thing.  I did my best there was no choice. Yet I still feel guilty.