I have adenomyosis, endometriosis and fibroids, I had an MRI in November 2024 to ensure nothing had been missed. In May 2025 I joined the waiting list for a hysterectomy. In November 2025 I found a large lump had developed in my pelvis, my GP reassured me this was likely one of the fibroids had grown but referred me through community diagnostics for an ultrasound which I had to wait six weeks for. Meanwhile an MRI in December 2025 for a back injury picked up this mass and my spinal consultant called to say they’d spoken directly to gynaecology and I’d been referred urgently, warning me the mass was unmissable and could be a malignancy. I had another MRI with contrast two weeks later, followed by an appointment with gynae two weeks after that. I was told the mri had been reviewed by MDT and showed a 10cm mass in my pelvis which has invaded into the myometrium of my uterus, that this has suspicious characteristics. I was told not a definite diagnosis but I need open surgery with an extended incision, that surgery is high risk of bleeding due to major arteries and adhesions, my cervix, uterus, tubes, and ovaries will be removed and they have to ensure no cells are spilt into my pelvis. I was told I need a ct scan with contrast of my chest abdomen and pelvis to check if anything has spread. Surgery was scheduled for four weeks later but was then cancelled the day before due to not having the full team available. Surgery has been rescheduled in four weeks. I would like to know now if the ct scan shows I am likely to face a cancer diagnosis. Is it reasonable to ask my consultant for this information? Is it normal to not be given a diagnosis at this stage? I want to be fully informed and to feel empowered to prepare myself mentally but I’m currently feeling like I’m not a priority and everything is out of my control. I’ve even wondered if I should go ahead with surgery at all now.
