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Hi im writing this because I am extremely confused with the situation.

I had a smer done in March and went into see obstetrician an gynecologist on 19th of may was (9)high risk HPV an sever dyskaryotic  And she attempted a Colposcopy but it made me feel so ill and felt i was going to pass out. So I was sent of and told I was going to be put to sleep to have a large lettz procedure.. this was finally done on the 4th of July I then recived a call on the 20th August and told I needed to come in a see the gynecologist consultation on the 22nd so I attened the appointment and i was told lt cconfirmed CIN 1, 2 & 3 and moderately differentiated carcinoma stage 1A1.

I was then told I was being sent for PET-CT  and a MRI of the pelvis issued a cancer guide pack and told ill recieve a call on 26th August from a  oncologist specialist.

It got to 3pm an I hadnt heard from anyone so i called the number issued and was told that due to the bank holiday my referal was only sent on 26th over to the liverpool womens hospital to be disscused on the 3rd of sept but someone had looked at my information at warrington and Decided that It wasnt nesiscery to go head with the PET-CT an MRI unless after the 2nd opinion of the womens hospital requested this.

Im currently sat absolutely baffled as to what any of this means... But while I've been sat screwing about how to speak to my parents about the situation because the information i left with non friday dosnt match anything that was said on Tuesdays call. 

I checked my nhs app and in october 2023 I had a smer that presented high risk HPV an said 12m repeat Although this didn't happen until march. 

Does it mean I have cancer or do I not due to having the lettz and what is supposed to happen next. 

Sorry if non of this makes sense but i am also autistic and have Adhd and my brain is just burning out. 

  • Hi

    My name is Gemma and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    I am sorry to hear about the worrying time you have been experiencing.

    Having cervical screening is so helpful, but you're right, it can be difficult to make sense of what happens next.

    The LLETZ procedure is a type of surgery that removes a small part of the cervix. It can be used to treat cervical cell changes (abnormal cells) or early-stage cervical cancer, as well as to diagnose cervical cancer.

    Your results showed CIN 1, 2 AND 3 and moderately differentiated carcinoma stage 1A1

    The grade of cervical cancer describes how quickly the cancer might grow or spread. The stage describes its size and how far it has spread.

    If you are having lots of tests or have been told the grade and stage, you may feel overwhelmed with information, confused about what you are being told or worried about what it means. 

    It can be really difficult to process thoughts and feelings, especially when you are getting information and a treatment plan, and then it changes. Dealing with uncertainty can be stressful, so you are right to get some help.

    Plans can sometimes change, especially if your case has been discussed at a Multidisciplinary Team Meeting. Usually, if you have been diagnosed with cancer, a team of health professionals will work together to plan the treatment that is best for you.

    It might be that they have discussed your case and feel putting you through scans is not required due to the stage of your condition.

    Having lots of different ways of finding information can make things more confusing. Do you have a named nurse specialist that you can ring to ask questions to?

    Or can you contact your consultant's secretary via the switchboard of the hospital and request a conversation so you can clear up issues?

    It might also be worth letting your parents know, they understand you and your other conditions and might be able to help you navigate through this.

    I hope this is useful, and please do not hesitate to get in touch with us again

    You may find it helpful to call our support line or contact us via Webchat. Our Macmillan Information Nurse Specialists are here to offer support and help with your questions on 0808 808 00 00 every day, 8 am-8 pm. You can also email us back, and we aim to reply within two working days.

    kind regards 

    Gemma

    Macmillan Nurse Specialist

    ref-GeS/Vg