Three weeks after last mitomycin treatment, still passing debris

Hi BlueRover 

It's Megan here from Macmillan's Online Community team. I wanted to let you know the Nurses have received your question and will respond as soon as they can. Over the Bank Holiday, the Nurses are available to help on the Macmillan Support Line as the Ask a Nurse section is closed until Tuesday 2^nd April.

If you need to speak to the Nurses sooner, please call 0808 808 00 00 send an email or start a live webchat during the opening hours of 8am and 8pm, 7 days a week.

In the meantime, I hope you will find support from connecting with others in our Bladder cancer forum. If you need any help using the Online Community, please email community@macmillan.org.uk or message the moderator account.

Good morning BlueRover,

Thank you for getting in touch and welcome to our online community, I hope you find it supportive. My name is Helen and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

I’m sorry to read you’re experiencing symptoms since completing your course of mitomycin treatment.

Mitomycin is a chemotherapy drug given for different types of cancer. There are also different routes of administration.

Depending on the type of cancer you have, and how the treatment is given this can cause varying side effects for individuals, including bowel and bladder problems.

As we haven’t access to your NHS medical records on the support line, the best people to reach out to about your symptoms today are your cancer nurse specialist or consultant. If you are unable to reach them, you may also have a contact number for 24/7 advice at your hospital, sometimes called a hotline or acute oncology helpline to call.

They will be able to assess you and advise whether how you’re feeling is to be expected or whether you need any treatment to improve your symptoms.

An alternative contact for medical advice is your GP or NHS 111 who are also able to assess your symptoms over the phone or online and direct you to non-hospital or hospital care if needed.

If you have any new, worsening or changing symptoms today such as increased pain, passing blood, unable to empty your bladder, severe diarrhoea, vomiting or have a temperature, then call 999 or if able, go to your nearest A&E for an urgent assessment.

I hope this information is helpful but if you have any more questions please don’t hesitate to get back in touch.

Best wishes,

Helen, Cancer Information Nurse Specialist 

You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

Ref/HeP/SMc