Struggling to eat

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My Mother-in-law is struggling to eat and it feels like she is fighting to go on for us (2 sons, daughters-in-law, and grand children) but we wonder if she has given up for herself. We don't know how to support her and we feel like no one professionally cares for her. We have become her carers after her surgery on the 6th Feb and she has declined every day since then. We ended up taking her to A&E a week ago and she spent 5 days in hospital. Scans reveal that she is medically clear of blockages and cancer but she was discharged barely able to walk or eat. She sleeps a lot and eats a tiny amount of food we put in front of her. She does have another medical condition but the major decline started after breast cancer was diagnosed. How do we support her? What kind of care does she need? It feels like medical consultants, doctors, and her GP have given up with treating her. We feel like we are slowly watching her die when we should be supporting her to get better. No-one will talk to us and no-one will tell us "there is nothing else that can be done" but that is what their inaction feels like. We want to fight to get her better but does she? We don't know what to do.

  • Hello Concerned daughter in law.  

    Welcome to the Online community here at Macmillan. I hope you find it a helpful place to access support and ask questions.  

    My name is Joanne and I am one of the Cancer Information Nurses on the Macmillan Support Line. 

    I’m sorry to hear that your mother-in-law is so unwell.  

    You may find our Carers Forum useful at this time. Carers UK can also provide useful support on all aspects of being a carer.  

    Supporting someone with cancer is very challenging and it sounds as if you are dealing with a lot of uncertainty about what has happened and what should be happening regarding her care and treatment so far. 

    This uncertainty can have a significant impact on the person with cancer and those supporting them. The stress of a cancer diagnosis can lead to difficulties and challenges with mental health which can have an impact on physical health and wellbeing, including reduced appetite and fatigue. 

    This advice about diet problems and fatigue includes some useful tips and advice for you going forward. 

    However, given that you have been unable to get accurate information about what is happening and what is likely to happen, and your mother in law's health is continuing to deteriorate we would urge you to request further assessment of her physical symptoms and overall wellbeing. 

    Cancer Treatment Options will vary depending on the extent and stage of any cancer diagnosis, as well as the impact of other health conditions but it is important that she has accurate information to make decisions about her health. 

    You should request a GP assessment to rule out any reversible causes for the symptoms she is having. The GP can also make referrals for appropriate support from district nurses or other community-based healthcare professionals such as dieticians or occupational therapists if appropriate. 

    Your GP should have access to hospital outpatient and discharge letters which can provide more information about what has been discussed and decided by the multidisciplinary team  

    You may also wish to contact her breast cancer team directly for more information.  

    You could also consider contacting the consultants responsible for her cancer and non-cancer care, via their secretary through the hospital switchboard. It can be useful to send an email outlining your specific concerns and the questions you have. 

    If you are struggling to accessing information from her healthcare teams, you may need to consider contacting the hospital Patient Advice and Liaison Service , or follow this advice on How to raise concerns about your GP practice  

    In order to access a care package for help with personal and social care needs, you can contact the appropriate bodies yourself to request assessment. This process can vary depending on where you are in the UK: 

    Health and Social Care assessment (England and Wales) 

    Assessment of Care Needs (Scotland)  

    Arranging health and social care (Northern Ireland) 

    I hope this information is useful and that you are able to get information from your mother in laws healthcare teams. Please do contact us again for further advice and support as you need to. 

    Kind regards 

    Joanne H - Cancer Information Nurse Specialist

    Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 00 00 (7 days a week, 8am-8pm) or by email.