Acute haemolytic Leukaemia and acute haemodysplasia with Covid

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My daughter has both these at a critical level and was due a bone marrow transplant before the Leukemia became critical. In hospital for targeted chemotherapy but developed Covid on the same day. Now on anti virals. How dangerous is this?

  • Hi ,

    Many thanks for getting in touch with Macmillan using our Online Community forums. I am so sorry to hear about your daughter's diagnosis, and the subsequent complications she has experienced since being in hospital.

    This is just a short message to let you know that your question was initially posted to our Ask a Work Support Adviser forum, and so I have moved it to our Ask a Nurse forum instead. Unfortunately, our Cancer Information Nurse Specialists are only able to answer questions on this forum from 8am on Monday, to 5pm on Friday.

    A Cancer Information Nurse Specialist will work on answering your question as soon as they can from Monday morning. If you'd like to speak to one of our team sooner than that, please call our Macmillan Support Line on freephone 0808 808 00 00. Our Support Line is open from 8am to 8pm, seven days a week. Once you are connected, please select the option to speak to one of our specialist nurses, and one of them will speak to you as soon as they become available.

    I hope that all makes sense, and that you are able to get the answers you need. If you need any help using our Community forums, please don’t hesitate to get in touch with us in the Online Community Team. You’re welcome to send us an email at community@macmillan.org.uk, or you can send a private message to the Moderator account.

    All the best,
    Matthew
    Macmillan Online Community Team

  • Hi Worried Mother

    Thanks for getting in touch with our online community. My name is Joanne and I’m one of the cancer information nurses on the Macmillan support line.

    Welcome to the online community. I can see that you are new to our community, and I hope you are finding it helpful.

    I’m sorry to hear that your daughter is ill in hospital with acute leukaemia and acute haemodysplasia. It must be a very difficult time for you especially as she has now been diagnosed with Covid.

    Both haematology conditions your daughter has been diagnosed with are serious, but it does seem as though her doctors have a treatment plan in place which is positive. The treatment plan may be complicated by her Covid positive result and anti-viral treatments. Her team will be trying to balance the need to treat her leukaemia whilst trying to support her immune system to treat Covid.

    I wonder if you if have been able to talk to the ward staff about your concerns as they will be able to answer your questions specifically related to your daughter.

     I also wonder if you might benefit from giving our support line a call. We often find we can explain our answers in a bit more detail over the phone, giving you the opportunity to ask more questions if needed. It can be very overwhelming not knowing what might happen, so although we can’t tell you exactly what to expect, we can help explain what usually happens for most people in a similar situation.

     I hope this information is helpful. If you have any further questions, please get in touch by email, webchat or phone. The Macmillan Support Line offers practical, clinical, financial and emotional support. You can call us free from landlines and from most mobile phone networks* on 0808 808 00 00, 7 days a week, 8am – 8pm.

     
    Best wishes, 

     

    Joanne

    Cancer Information Nurse Specialist

    Ref: JF/IY