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Accuracy of information on the Forum

Dewibach
  • 1 reply
  • 12 subscribers
  • 520 views

I have Stage 3 colon cancer. The tumour was removed in March and I'm currently in my 5th week of Copax Chemo, which is doable but tough. I come from a scientific background and my wife is a physician.

The MacMillan Community Forum is a great place for people to share their stories and experiences but these are experiences. Some of the information posted can be quite misleading and readers should be made aware of that and that they should always defer to their oncologist in matters medical. Admitted, there are benefits from sharing our pain and I appreciate the work done by MacMillan.

  • Hi ,

    My name is Matthew, and I’m from Macmillan’s Online Community Team. I’d like to wish you a very warm welcome to the Community site, and to say thank you for sharing a little bit about what brought you here. I’m sorry to hear about your diagnosis, but I am pleased to hear the tumour has been removed, and that you are now progressing through chemotherapy.

    You mentioned that your chemotherapy has been “doable but tough”. If you would find it helpful, you can get advice on how to mitigate the side effects of your treatment from one of our Cancer Information Nurse Specialists. Just post your question on our Ask a Nurse forum, and then a qualified Macmillan professional will aim to respond within 1 to 3 working days.

    I really appreciate you taking the time to provide us with feedback about the Online Community. I was interested to read about your thoughts on some of the peer-offered support you have encountered on the site.

    We have a set of Community Guidelines that we ask members to follow when engaging in medical conversations. We ask that advice should focus on personal experience only, and that it should not contradict any advice given by any medical professionals assigned to the care of the member in question. You can read more about this by visiting the Community Guidelines – Medical conversations section.

    If you encounter any medical advice which you believe is misleading, please do not hesitate to bring it to our attention by contacting the Online Community Team at community@macmillan.org.uk.

    I hope that gives you some reassurance regarding how seriously we take the support offered by our Online Community. If you need any tips on using the site, please check out our Help Pages. If you have any questions, please don’t hesitate to get in touch with us in the Online Community Team. You’re welcome to send us an email at community@macmillan.org.uk, or you can send a private message to the Moderator account.

    All the best,
    Matthew
    Macmillan Online Community Team

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