Forced to sell home and been searching 7 months for a rental that will accept my two dogs but nothing. Got 4 wks before I start living in my van before I can buy a water worthy canal boat. Any others in this predicament? Or have any advice?

Hello, thanks for reading, I am new here, I have MPN JAK II Blood cancer and a connective tissue disorder called Ehlers Danlos Syndrome.

Hospital are waiting for me to agree to start chemo but I must be well enough to find accommodation as I refuse point blank to surf sofas of family and friends with two big German Shepherds.  
BBC radio 2, Jeremy vine show on rental and homelessness; thousands of people like me face homelessness because we can’t afford the house prices and can’t even find a caravan in a field that will take big dogs. 
I haven’t claimed disability benefits or housing and don’t see why I should be a drain on society or the Tax payer given my husband since 1996 earns a very large salary as an A&E Doctor and Surgeon, but when I got diagnosed he told me he wanted “A partner not a Patient”  so he had yet another affair only this time he froze all our bank accounts, took £79,000 in our business dividends, £46,000 from Halifax savings and he  ran off with yet another Nurse and stopped ALL financial support for over a year to try and force me into selling family home so he could free himself from the mortgage without my getting my financial order sorted in Divorce, he’s told the court last week he’s desperately trying to Marry this September despite us not having Decri absolute until pensions are investigated and court order gives me my half, my legal bill thus far is nearing £28,000 defending myself from his relentless court petitions despite him losing them. Once the legal fight is over and I cash my pensions i know I’ll be ok at some point just not sure exactly where that point actually is at the moment. 
The sneaky reason he is telling Court he’s got a wedding is; if that court had awarded him the Decri absolute; it would have voided my right to claim my half of a pension valued at just over 1 million. He’s desperate not to lose value by cashing it in or splitting it. He literally has a million reasons to hope the Stress or cancer kills me first. Just out of Spite I’ve decided to out live him!


Do not take pity on me please as I am grateful for every second of everyday that he is out of my life, I wasn’t allowed anything bigger than a Terrier.
I am the happiest I’ve ever been, loving life despite my life looking pathetic on paper, in reality, my life is turning out pretty AMAZING!  Just hope I don’t end up living in my dogs kennel because they haven’t got one!

Once I’m settled somewhere I can enjoy returning to my Art

My daughter does get rest bite and we plan to live apart, she’s wasted enough of her life looking after me in one way or another. Yet, so many don’t get ANY breaks, so many are children and so many are disabled or infirm themselves, since 2020 all charities have suffered including safeguarding and supporting the vulnerable. 

  • Hi  and I see it’s your first post so welcome.

    I am sorry to hear about the challenges you are having to deal with and I do hope that things can get concluded and you are able to find some stability and move into your treatment.

    I was diagnosed way back in 1999 with a very rare type of Skin Non Hodgkin’s Lymphoma. I help out around our various blood cancer group and I thought I would highlight our dedicated MDS/MPN/ET/PV/myelofibrosis (MF) support group where you may be able to connect with others who are going through treatment for MPN.

    Macmillan have many support platforms so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too.

    These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.

    Give me a shout if you need further help.

    Best regards.

    Mike - Thehighlander

    It always seems impossible until its done - Nelson Mandela

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  • Thank you so much for your warm welcome. Life’s difficult challenges have made me the Strongest most resilient person I know so please, no pity, I just need to learn more from others who’ve had the chemo, at present I don’t see the point of poisoning myself with Chemo for something I’m repeatedly told is incurable, I’ve totally accepted my mortality and refuse to reduce the quality of life for Quantity, be it to appease family who can’t even accept my mortality much less their own and if it was to prolong my life: I can’t grow old, they call Ehlers Danlos Peter Pan Syndrome as we usually look a lot younger than we are and you never meet an Ehlers sufferer older than in their early 60’s. So I’m anxious about the pressure I’m under to take the chemo when what I really plan to do is buy my dream boat and live a wonderfully peaceful life in nature be it rivers or woods.

    selling my home, possessions and clutter is so freeing I feel like i can fly. 
    I’m so glad you shared that you were diagnosed and have beaten it yourself for so long, gives me a little optimism which is a pleasant thought, thank you. Nicky. 

  • Hi Nicky, it’s amazing what the body and mind can deal with.

    My type of blood cancer is also incurable. Over my 23 years I have various levels of treatment and I am now 6 years 8 months out from my last treatment and doing great.

    Up until Sep 2016 I only ever had about 9 months at a time before moving into my next treatment but I have lived a full and successful life despite my uninvited guest in my body.

    You will see from my profile (hit my community name) that I have a serious amount of treatment but in the whole most was ok and a means to an end.

    Keep your hopes and dreams at the front of your mind….. ours were written in the back of the note books we took to appointments where we had our questions and all the j formation we were given………. I see hopes and dreams from many years ago have bug tusks beside then and new dreams added to the list Thumbsup

    Mike - Thehighlander

    It always seems impossible until its done - Nelson Mandela

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  • Hi

    Sorry to hear about the challenges you are facing. 
    have you tried asking the hospital about a rental whilst you hare having treatment. I know that my hospital has a number of properties they let out (usually free through) to people undergoing treatment if they have to travel far or live in difficult circumstances. 
    they offered it to me and the details they gave me said well behaved furry friends can live there too. I didn’t take up the offer as I live close to the hospital but I met someone in the hospital waiting room that lived 5 hours away so was using one of the properties with his greyhound. I think it does vary hospital to hospital but may be worth asking, especially if they are ready for you to start chemo