I was "lucky" enough to be put on Anfatinib 40mgs. I t was horrendous, nose bleeds, bleeding gums, facial rash and, worse of all, constant diarrhoea so next time I saw the oncologist, I only agreed to try 20 mgs rather than the 30 mgs he had in mind. Sadly, same result and I decided on Sunday that I am not going to spend every evening of my life from now on in the bathroom with diarrhoea. I had clearly understood from the nurse that before my appointment, I should have a Scan but I had no appointment for this so I rang today, as instructed only to be told by the same nurse that Scans only come quarterly. So I remain confused, do I go for an X ray next week or not? Given my advanced age and the treatment is only palliative, why continue with expensive treatment when it is only delaying the inevitable? I really would appreciate some clarity in what I am told as well. Sorry to moan but I am really struggling with this cancer thing.
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