I mentioned in my first blog post that the only patient experience narratives of taking Rucaparib I had found were on US websites. It's been interesting making forays into this world as it is really quite different from the online support world that I'm familiar with - the Macmillan online community.
In Macmillan world, there is a lot of moral support. I am a community champion - a volunteer with some training…
Week 2 commences. Frankly, lifting my finger to tap at the iPad keyboard feels like a mission today. I made the mistake of having a short swim, making supper and having the neighbours round yesterday. Really, this business of managing the fatigue is just too dull.
Read up on fatigue and the key messages are (1) it's not helped by sleep. True enough in my experience but the urge to sleep is overwhelming. A morning…
One of the hopes in taking Rucaparib is that it will be "better than chemo". But is it?
I'm a week in so it's very early days but let me compare.
Chemo: a week in to the typical gynae cancer regime I would be flattened with long bone pain, shivering with lowered body temperature and breathless from the hit on my red blood cells. I'd be worried about getting an infection so wary of going out.…
I really should have started this some days ago. It's day 5 of the new drug regime and despite the warnings, I'm taken aback by the fatigue I'm feeling since my first dose of Rucaparib on the evening of November 17th. I'm pretty much stapled to the sofa and feel as though my batteries are on about 20% charge. I was warned - and I'm told it will get better. So rather than concentrate on the now, I'm going to look…
