What a difference a day makes - Day 9

Less than one minute read time.

FormerMember

18 Nov 2015

Today I happened to see a Specialist nurse that I saw on my first appointment to the Consultant on 23rd October - she said 'hi how are you?' - I said 'fine' - she said 'no you are not' - so I told her how I really was !!!!! - she upped my morphine there and then and told me what to take and when to take it on 'session' days- it was such a relief to talk to her and for her to recognise the fact that I was far from OK shows just what a fantastic caring, understanding, perceptive person she is.

I feel so much stronger and better prepared for what lays ahead of me - knowing that I am in very good hands but what I must do is open my mouth and tell someone when I am struggling - they are not mind readers - so if I don't tell them they wont know

Cruton over 9 years ago

Hello Lillie Anne.They say it's good to talk but often we hide how we really feel from not just those close to us but all we come into contact with.The brave face whilst feeling so very vulnerable I think is something many of us can identify with.Each day people say "how are you" and the answer is usually "I'm fine " and they go on their way content with that response.When someone actually sees through that brave face and you feel able to actually say how it feels for you can be such a relief it allows you to open up and let those feelings.Its good to know talking has helped and that you are feeling stronger and better prepared I hope all goes well for you and it sounds as if your Specialist Nurse really is special.Take Care Cruton x
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 9 years ago

Hi there,

Ive just replied to somebody who is so stressed, I just wanted to say hello.

My wife has had a Masecomy and LD reconstruction. LD we ask ourselves, Latissimus Dorsi which is the muscle in your back which allows you to move your arm up and down. The surgeons have been fantastic and I cannot stop thanking them. Chemo has followed in which my wife is half way through a six session therapy.

What has helped us both so much is to be able to talk to the Breast Care nurses, the chemo nurses and other patients about our fears of what is to be for the future. As we all discover each of us are different and react differently to news, the therapy and the many different "add ons'. That is thrown at us. What I have learned is that we need to talk to each other more, ask more questions to whom have been through and going through this rough ride whether we are the carers or the patient.

So ask me what you want. I also need support, so let us ask each other direct questions of how did you get that help or can you explain this or that. Be well all. Harvey
- Cancel
- Up 0 Down
- Reply
- More
- Cancel