Today I happened to see a Specialist nurse that I saw on my first appointment to the Consultant on 23rd October - she said 'hi how are you?' - I said 'fine' - she said 'no you are not' - so I told her how I really was !!!!! - she upped my morphine there and then and told me what to take and when to take it on 'session' days- it was such a relief to talk to her and for her to recognise the fact that I was far from OK shows just what a fantastic caring, understanding, perceptive person she is.
I feel so much stronger and better prepared for what lays ahead of me - knowing that I am in very good hands but what I must do is open my mouth and tell someone when I am struggling - they are not mind readers - so if I don't tell them they wont know
