Separation of support.

Less than one minute read time.

I wish that there was an organization , TOTALLY SEPARATE from the current cancer organizations , that was JUST for family , friends and next of kin  of cancer patients .  Macmillan have done nothing for me . When my partner was diagnosed with ovarian cancer in hospital , all I got was a leaflet . So ........my partner and  I are in a hurricane and all I was given was an umbrella   !! She even told my partner to chase up the hospital discharge letter herself after it was not given on the day and failed to materialize in the post.

Anonymous
  • FormerMember
    FormerMember

    Hi Manuel,

    I've been reading your blog and the article in the daily mail from your partner. She's one brave lady. As I have read, I've been hit by how much you love her and how angry you feel. I think you are very brave to get all this down in words and I hope it's helped you. I know I've found it helpful to write down my feelings here in a blog and in the discussion groups.

    I'm sorry you feel let down by Macmillan. There is a family and friends group on this community - you may find by joining it you will get in touch with people like yourself and be able to share your experiences and support each other. This community is all about us helping ourselves. No magic answers, nothing special - just people looking out for each other.

    I wish you and your partner all the best

    Xxx

  • FormerMember
    FormerMember

    Hi , sorry to hear that, how awful! We had a problem, two fold, with our MacMillan Counsellor ................was just beginning to open up and trust her when she accidentally revealed that she 'loved to bits' a member of staff from the Cancer team who had created a long term stressful unresolved situation for me! At the beginning stages of counselling she had told myself and my husband that it is normal to feel anxious under the circumstances, but after a discussion with a Geneticist involved she told me that current NHS guidelines advise CBT sonI couldn't see her anymore, and had to be referred by my GP!!! It took four months to get to see a CBT therapist, who then told me it wasn't suitable in my circumstances of Cancer and so at the time when I needed it the most MacMillan weren't there to hold my hand :-(. It's about time that compassionate staff were employed by the NHS and charities like MacMillan?!!! I hope you both get the support you obviously need asap! In the meantime take care, and let close family and friends know you are struggling.