A number of people have reminded me that I haven’t updated my blog for a while. So here it is. I was waiting until there was something concrete to report but I just need to get this off my chest.
As previously written I have been having increasing problems with my left leg. I now can’t walk without the use of a walking stick. Everything seems to take 10 times as long. Simple things like emptying this dishwasher is a complete pain. My frustration at not being able to do the most simple of tasks sometimes gets too much.
I’ve been referred to the pain clinic and I’m due to have a steroid injection in my pelvis on the 20th of June. However, other events may get in the way.
I had a routine (6 monthly) CT scan on 2nd May. Nothing out of the ordinary but another litre of contrast liquid desperately trying to taste like lemon but with a horrible aniseed flavour. Two days later I received a phone call from the colorectal team letting me know that they had seen 3 small spots on my liver that required further investigation. So I was sent for a PET scan. This I had on the 16th May. And because the MDT meeting is on a Thursday I missed the one that week. However, after the MDT meeting the following week I had another phone call to inform me that the PET scan had shown up an area on my pelvis that also needed further investigation and I would need an MRI scan. This I had last Saturday June 2nd. I will now be discussed at the next MDT meeting tomorrow (June 7th).
To say I’ve been anxious for the past month would be a huge understatement. Each scan and phone call has brought the possibility of an enormous number of possible scenarios. The possible issue with my pelvis may explain the issues I’ve had with my leg. Again and again I’ve tried not to look too far into what could be wrong and failing miserably.
My mantra all along has been ‘What will be will be’. Hopefully by tomorrow I will at least know what’s wrong after which I imagine that I will get an appointment with my consultant and again hopefully a treatment plan. Again I’m assuming that something is ‘wrong’. We’ll know tomorrow.
On the positive side I have been having my counselling sessions. These have been very helpful. They have allowed me to ‘dump’ all the emotional baggage I have had around my cancer and other parts of my life. I thoroughly recommend being able to talk to someone not directly connected.
Even with my leg problems I managed to go to a 4 day music festival in Derbyshire. And yes I camped! Fortunately I was allowed to use the Accessible camping field where I could leave my car close to the tent. It was very hard work but very enjoyable especially seeing Robert Plant live.
Also I’m off to Brussels on Friday for the weekend and I’ve a holiday booked for the beginning of July. So still lots to look forward to.
So I wait until tomorrow.
As always one step at a time.
