Update on Cetaximab

1 minute read time.

I’ve had a bit of a reaction to the new regime of FOLFOX.

I’ve developed quite bad hand foot syndrome. So bad in fact that I have quite nasty cracks in the skin on the soles of my feet which has meant that anything involving standing up has been incredibly painful. Walking has been a no no!

It was initially thought that it was a reaction to the cetaximab. This causes the skin on my hands and face to dry up but shouldn’t affect my feet. However it was thought that a week off the cetaximab would allow me to recover sufficiently to continue with my new chemo regime.

I must admit the week off has been much appreciated. I’m currently on weekly Cetaximab and fortnightly Folfox and it’s begun to take it’s toll. I slept from Saturday 10:30pm until I Was woken up at 11 the next morning. A quick bowl of porridge, a shower and I was back asleep by 1.

At my last meeting with my oncologist we discussed when my next set of scans will be done so I can get an idea when I’ll be stopping the chemo. She was a bit non-committal mainly because she needs to discuss me with the MDT at Leicester (who are doing my liver surgery) And again hopefully this will be before Christmas.

The results of the scans could go one of several ways. But I believe that any speculation is a waste of time. The scans will show what they show and I will have to deal with the situation as it is.

Anonymous