Still in pain

2 minute read time.

Not having a good day. I’m still getting lots of pain in my left buttock and leg. So much so that I now have a pronounced limp. The painkillers I’m on (Amitriptyline and Gabapentin) have cured to a great extent the pelvic pain I was getting (I still get the odd reminder however) but haven't touched my left leg. I went to the pain clinic yesterday. The doctor pushed and prodded me for a good while, lifting my legs and pushing my pelvis. From my cries of pain He diagnosed that I would need a steroid injection into the joint in my pelvis followed by physio. It sounds painful but if it works I’ll try it.

I’m not sure why but recently the number of my dark days seems to have increased. This could be down to my ongoing pain issues or it could be just the weather. The worst was Easter Sunday. I sat on my allotment in the teaming rain shaking like a jelly. I don’t know what set it off. The good news is that I have my first counselling session on the 25th April.

So with the pain clinic and my counselling there are positives to it all.

The last week has seen 2 major anniversaries in my life. On the 6th April it was a year since my liver surgery and on the 9th it was 2 years since I was first diagnosed with cancer. I still remember the numb feeling when I was told and my fears of telling family and friends. Scary stuff but I/We/They all got through it. I must have been concentrating so hard on these two dates that I completely forgot that April 8th was my wedding anniversary.

Then there are my next set of scans in May. It just never seems to end.

And don’t mention the weather. Between the rain and snow we’ve had I haven’t managed to plant or sow anything on the allotment.

I’m looking forward to Saturday though. I’m part of a volunteer choir (The Men of Northamptonshire) who are singing at the Spinney Hill Theatre in Northampton in aid of Prostate cancer.

 http://www.nmvc.co.uk/wp-content/uploads/2018/02/NMVC-CHARITY-CONCERT-FOR-PROSTATE-CANCER-UK-e1518790757859.jpg.

The choir (some 60 men) have been rehearsing for the past 7 weeks and on Saturday we’re appearing along with the Northampton Male Voice Choir and the soprano Emily Haig. I just found out that it’s sold out! I’m sure that there will be recordings posted on youtube. So wish me luck!

And for those in the east of the country we may be appearing on Look East tomorrow.

It’s nice to end on a positive.

Take care.

Anonymous
  • FormerMember
    FormerMember

    Hi, I have not used any blog before so please excuse if my question is inappropriate. I have taken out Euro tunnel personal travel insurance because the premium quoted in comparison to all other travel insurance was considerably lower. However it has now been suggested to me that "if something seems too good to be true" .Well you know the rest.

    Has anyone used Eurotunnel travel insurance and if so have you made a claim and was it settled satisfactorily. Eurotunnel personal travel insurance do not ask about your conditions only that you are fit to travel, and your diagnosed terminal.

    Many thanks.

  • FormerMember
    FormerMember

    Sorry, should read you have Not been diagnosed as terminal, and are fit to travel.

    Thanks 

  • FormerMember
    FormerMember

    Hi Big Pete

    I am a mere onlooker, trying my best to support a friend in a similar situation to yours and finding it increasingly difficult to find a balance between support, encouragement and empathy particularly when they have their ‘moments’ - it can be truly heartbreaking.

    Have just read through your ‘Journey’ and it is clear that, in spite of the inevitable potholes and diversions that you have had to negotiate, you remain an inspiration to so many others. I have never felt the need to write a comment but having read your latest offering it feels right to add a thought or two.

    The fact that you have managed to retain your sense of humour, remain at work and still participate in things like the concert you mentioned this week is fantastic and I’m sure the allotment will wait! You clearly have a great family and friends who are on hand to care and support you as the journey continues; I wonder if they truly appreciate the amount of effort that your continued determination to carry on as normal is taking? I ask because my friend expects me to treat him as normal but when I see him so weary or so obviously in pain, I just can’t help but ask if he needs help which then provokes a ‘look’ or the standard ‘i’m Ok’ response - I have tried encouragement, sympathy, nagging and cake but am running out of tactics and increasingly just dissolve into tears which is, I am sure, the last thing he needs.

    I have come to realise that the peaks and troughs all of the folk on this site seem to suffer are inevitable and that as a friend, all I can do is try to maintain an even keel - keep my own concerns, suggestions and most of all, my fears and tears to myself; however upset or worried I am it cannot be as bad as he and you are experiencing. I wonder how your wife and friends cope - do they get the balance between nagging and encouragement right? Do they dissolve into tears at the most inappropriate time? What can we as mere onlookers do to provide the best possible support?

    Sorry for the random questions and a huge thank you for sharing your optimism, sense of humour and courage with the blogging community - I am sure that both fellow sufferers and their supporters appreciate your contributions tremendously. Keep it up and stay positive - potholes are easier to see and repair in the summer and you can always pass off the carrots from Tesco as your own!

    Big hugs x

  • Hi Pete. Just saying hello and sending you a big hug. You sound really miserable. I am so sorry. Dark winters really don't help. Hope you're feeling a bit better now & your singing was beautiful. Sx