Let the Christmas festivities begin.

3 minute read time.

Well, as you can see from the title my latest scans showed no evidence of cancer! To say it’s a relief would be a huge understatement. I’ve tried to put a brave face on my anxiety (not always successfully) but I was extremely worried. The thought of going through all that has happened in the past year to be told my cancer’s come back (it wouldn’t really have gone away) so soon would have been difficult to take. Yes, I know that it may come back in the future but at least for the time being I’m still cancer free.

I was in a bit of a daze when I was told the scans were clear but it was mentioned that I would be having scans, initially every 6 months then every year and then every 2 years, for the next 10 years. 10 years! I hope I can let you all know how the scan goes in 2027.

So the next step is May 20th 2018 (I’ve already received the appointment). And now I can start to plan next year. Something I could only dream about this time last year.

It’s not all champagne and roses at the moment. As I’ve previously mentioned I’m struggling to cope with the emotional side of being cancer free. My mood changes so quickly. I have good days and some very bad days when I can’t stop crying. I think it’s time to admit that I need some help. But it’s deciding where to start. There are lots of options, GP referral, online wellbeing courses, face to face counselling.

I think my first action will be to call the MacMillan. From what I’ve seen on numerous forum threads my problems are not unique and I’m sure many have gone down this route. We’ll see what they say. I think just admitting to myself that I can’t do this on my own has helped.

I'm still getting pain in my backside and legs from the sciatica caused by my scar tissue. Some days, like yesterday, the pain is extremely bad and no amount of painkillers and hot baths can ease it. It really is a case of hoping for the best and waiting until it ends. Then I have a day like today with the odd twinge but nothing too bad (day isn't over yet though). There's no logic in it whatsoever. I wish I could determine what sets off the bad days and avoid it. But to be honest this is a small price to pay for being cancer free.

On a lighter note last Friday I met up with some old school friends (we met at school in 1970) for a few beers and a curry. I had a great night. I haven't laughed so much for such a long time. It was the first time I’d seen them since my ‘all clear’. The whole evening was spent reminiscing about the ‘good old days’ and planning for our trip to Majorca next July. Although I’m not the oldest of the group I was the first one to get married, the first one to become a father and the first one to get cancer. If any of them are ever in a similar position to me I hope that I can be of use to them.

So the first door of my advent calendar opens tomorrow and I’ll be smiling.

Happy Christmas

Anonymous
  • Delighted for you about the clear scans. Excellent. But really sad to hear of your fears and worries & depression. I felt exactly the same and wish I had sought help at the time. We plod on through thinking oh it's ok cos the cancer has gone. But the huge emotional impact has left a mark and can't be sorted easily. We're also bereft cos the daily / regular care we received during treatment etc has gone. That was very hard. Ask for help and use whatever you can. I found physical exercise helped (yoga, gym & aqua) and I had a lovely dog at the time although she is gone now. I'm not back to normal but is anyone? There may be a new normal that we have yet to find. Sx

  • FormerMember
    FormerMember

     You hit the nail on the head Sarah, my emotions were all over the place once my chemo stopped.  during treatment I had my routine week one Chemo, week two stay in bed tired and bad side effects , week three feeling bit better, start all over again  and all the time I had  that comfort blanket chemo team /family helping me through it all.

    My cancer has gone hooray!!!,  I am still to have radiotherapy and injections for HER2 but I should have been shouting from the roof tops but instead I found myself really down crying all the time and pushing people I love away I too realised I needed emotional help because I couldn't go on feeling like this and I didn't know how to get out of this dark place I was in what made it worse was people thought "Chemo over so all ok now" 

    I decided I needed to visit  my doctor who set me up with the well being clinic which has been helpful, also recently on a recent hospital visit  the receptionist commented on my head scarf and said she was wearing a wig we got chatting about after treatment and how we felt ( she had been given the all clear just under a year ago)  we exchanged numbers 

    She phoned me to say she is starting a drop group in the new year and would I be interested, this has gave me something to focus on and although I still have my dark days I am having more lighter ones I also think your idea of exercise Sarah is good and I am  going to look into it after this blog 

    Its a hard journey before and after treatment but we are here to tell the tale and help each other lets stay strong guys and not let this C ruin our lives