Happy New Year

2 minute read time.

Usually by this time of the year I’ve started to plan for the year ahead. Weekends away (music festivals, beer festivals, sporting weekends, city breaks with friends) plus holidays. I’ve usually got a planting plan sorted for my allotment. I‘ll usually have a list of ‘jobs’ to be done in the house and garden.

But not for 2017.

The only event planned so far for next year is my eldest son’s wedding in May. The rest of the calendar is blank.

Life has been put on hold until the results of my PET scan are known. I’m due to have the PET scan on January 9th and my appointment with my oncologist is on January 25th. Until then I’m in limbo.

I’m not looking forward to the outcomes. At best I’ll be recommended for surgery. First on my liver and then, depending on my recovery from that, surgery to my rectum. This will mean a colostomy with all that entails. If surgery isn’t an option I don’t know what will happen. More chemo I assume.

And that’s my problem.

It’s the not knowing. I start to imagine all sorts of things going on in my body. This is my fourth week off chemo. I’m still getting side effects though. The peripheral neuropathy is still present in my hands and feet, my fatigue levels are just as bad as before and I still have the rash and spots from the Cetuximab. My bowels seem to have a mind of their own. Diarrhoea one minute and constipation the next. Both are causing me a certain amount of pain.

I keep telling myself that it’s not long to wait for the scan and results but my anxiety levels are high. I’m getting increasingly irritable. I enjoyed Christmas with my sons but I wasn’t the best of company. This was mainly due to tiredness. I was in bed by 9 o’clock on Christmas day. Mood swings are nothing new with me but even I have tell myself to stop moaning at times. I’ve given up watching the breakfast news as I know I’ll be ranting about it for the rest of the day.

So if I’ve upset or generally pissed you off I apologise. I have to constantly remind myself that I am not in this alone. I have support from family and friends, plus everyone on this website. Thank you all for your words of encouragement and advice. No one should face cancer alone and thanks to you all they don’t have to.

But whatever route I follow on my journey all I ask is that God gives me the strength to face that journey.

Have a happy and hopefully healthy new year.

Pete

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Anonymous
  • FormerMember
    FormerMember

    Hi pete,

    Scanxiety is the worst isn't it?  I don't know about you but I find it very hard to plan anything concrete, it feels like tempting fate to much?

    I remember how hard the side effects from chemo are, particularly the bowel issues, the fatigue will gradually fade overtime as will all the symptoms.  But then I found I worried about the fact that my cancer was no longer being treated and then worried about what it was up to.

    I'll keep my fingers crossed that your scan is kinder to you than you fear and that the chemo symptoms ease off a little.  Who knows?  maybe you might feel like a little planning for your plot?  Having a focus helps me I am sure.

    Happy New Year to you and your family, here's to a kinder one.

  • FormerMember
    FormerMember

    I am in the same boat, awaiting results of scan mid January, possibly end January as it may get  pushed back.

    Being a project manager and spending my life planning at work and socially  - similar things - festivals, walking weekends and holidays its extremely frustrating to plan just day by day and even that goes out the window if not feeling up to it or if others are not well. 

    Its probably not helping but at least I understand what you are going through 

    Have had 2 lots of surgery and almost half way through 1st set of chemo.. which may be ongoing .. unknown at this point 

    I try and plan activities each day -- a walk or a lunch.  Evenings at this time of year I find difficult and long.

    For what its worth I had a stoma for 3 months and its not that bad.. if I had to live with one permenantly then it wouldnt be the end of the world 

    All for now. Keep positive and small steps at a time