Countdown to 'C' day

Hi, Big Pete.  I hope the first experience was OK.

 I had the same chemo as you in 2013 and had the usual side effects but no upset tummy.  I had it every 3 weeks so the last week before the next dose I felt well enough to go out and even away over-night occasionally.  My husband was very supportive which made my life easier too.  You can go for meals to small places if you take your diet warning sheet with you and ask the chef what they have that fits the restrictions.  My only lasting problem is peripheral neuropathy, so if you get tingling fingers and numb feet do tell your oncologist and he should reduce the oxalyplatin - I left it too long so have some remaining effect.  But it was worth the discomfort as I am over 2 years on and fit and well. 

You do get used to the routine.  Do let yourself rest and others help - you can help them when you are fit and well again.  Very best wishes.

Hi Pete. I've just been for my scan results following my treatment (all good) but am still having side effects. Having been through exactly what you're starting I can honestly say you have to expect the full list so you're prepared and hope for the best. I struggled at first wondering what was "normal" and what I needed to contact the hospital with - the more you learn about what could happen the better you cope if it happens. I wasn't lucky and I had a rough time my worst were diarrhea (or liquid poo to be more correct), reaction to the cold (not great when you start treatment in October!), and the one that builds up and gets worse the fatigue. You do learn how to cope, if you have something you need or want to do just realise that it may mean a day in bed after. Sitting chatting to others during treatment I learned that I had more than most. My dose of tabs was reduced slightly to help the diarrhoea and the last 2 intravenous sessions were adjusted to try to help the fatigue - and at the end a transfusion bumpped up my low iron count. What I found I ended up doing was looking at the bald patients who looked bad but felt great and wishing I didn't look well and feel like crap. People just don't understand the fatigue.

All the way through though I kept thinking I've 6 months of jigsaws and old films- any days out, visitors or normality are gifts. I'm looking on it as I've done the fighting (even though I've felt battered) and now I'm on recovery, trying to get myself back but by bit.

The time to rest, sleep when you need and know that it's temporary. I've also learned I'm great at on line scrabble now too!

Hope your getting on ok first one out the wayxx Ellie