lost and scared

Less than one minute read time.

Today is one of my dark days. I've never felt so lonely and isolated, having noone to vent to because we're all going through the same thing.

my dads condition is so bad now, he's confused, lost so much weight and so frail. I'm scared I'm going to loose him. He has throat cancer, but several separate doctors have advised its elsewhere, then stopped when realising we have no idea on the deterioration.

we have tried to speak with the oncologist but noone will meet with us... I'm not ready to loose my dad, but don't know what to do next.

Anonymous
  • FormerMember
    FormerMember

    Firstly, you take slow deep breaths and feel yourself getting stronger to face whatever is going to happen next. Trust me you don't know how strong you can be until you have to be.

    Secondly, just be there for your Dad - that will mean more than anything to him even if he can't tell you.

    Thirdly, be strong and bang on the table and insist on seeing someone to discuss your father. You need the truth however hard this may be. You can then be strong enough to cope with it.

    Finally, keep writing your thoughts on this blog, no matter what time and how bleak you think everything is. Writing it down always helps, and the fact that, sadly, thousands of us are in similar situations encourage those who care for people with cancer to carry on, even if we don't always response.

  • FormerMember
    FormerMember

    hi wendy, thank you for your kind words.I will keep going andusing the blogs. it really does help that there are kind caring individuals like your self out there who are ready to listen and supports others :)

  • FormerMember
    FormerMember

    Hi love, hard to say dont be scared but we are all here for you, agree with Wendy's suggestions, dig your heels in and get answers It will help you

    Hugs

    Rustyk XX

  • FormerMember
    FormerMember

    Hi Merold

    I'm sorry to hear about your dad.  I agree with Wendy you need to be strong and ask some questions.

    Your dad should have been given details of his Cancer Specialist Nurse or Key Worker.  They are there to support your dad and you (his family) through this.  If you have their number ring them and ask all the questions your need answers to.  If they cannot answer you there an then, they should be able to speak to his consultant on your behalf and get the answers for you.  

    If your don't have the Cancer Specialist Nurse or Key Workers contact numbers then ring the PALS office at your dad's hospital and they should be able to get this number for you.

    Macmillan have an excellent help line, the number is 0808 808 000 (9.00 am to 8.00 pm Monday to Friday) and they offer all sorts of support.  You can speak to a nurse or someone for emotional support.  There is always a friendly voice at the end of the line.

    Have you spoken to your dad's GP?  He should be able to prescribe build-up drinks for your dad to help with the weight loss.  

    You must also look after yourself.  If your dad's hospital has a Cancer Support Centre (could be a Macmillan or other) pop in and see them, they are there to support you as well as your dad and they may be able to arrange counselling for you.  Counselling really helped me when I was feeling very down.  If the hospital doesn't have a cancer support centre ask the Specialist Nurse for the nearest one to where you live.

    Do take take, and I send you a hug.

    Lynne