Dying for a Cure - Cancer Campaign

2 minute read time.

In October 2015 I lost my wife to ovarian cancer at the age of just 41. From the point of diagnosis she was forced to accept a punishing treatment schedule with systemically damaging side-effects and virtually no prospect of a cure, just so that we could have what little extra time together we could. Over a three year period I watched her suffer and deteriorate, as hope faded away, until she eventually developed untreatable symptoms and ran out of options. In the end, despite having access to amazing palliative care from the local hospice, she suffered a slow and painful death watched by myself and her family.

Sadly mine is an all too familiar story. Like many in my situation, I became immersed in the world of cancer and was shocked to discover how cancer has become one of the most lucrative markets on the planet, with annual revenues from cancer drugs in excess of $100bn (£70bn) and the highest profit margins of any major industry in the world. While this alone is morally incomprehensible, cancer cures are being held back by this commercial conflict of interest and life-saving drugs are being priced out of reach of patients.

The current system is letting cancer patients and their families down and nobody seems to care that we're choosing to make money rather than save lives on an incomparable scale.

The current system for developing cancer drugs depends mostly on private investment from pharmaceutical companies and, as investors demand good returns on their investment, it's no surprise that what we've ended up with is very profitable drugs rather than very effective ones.

I am not alone in believing that this tug of war between profits and public health acts like a handbrake on progress - in September 2015, the Council of Europe voted 94% in favour of a European-wide Resolution to tackle this very issue and several leading figures from the medical world are now also calling for an overhaul of cancer drug development.

Dying for a Cure - Cure Cancer Faster

I have therefore decided to take the initiative and set up a formal campaign to urge the UK Government to reform the whole system for developing cancer drugs, taking on board many of the issues identified by the Council of Europe.

The campaign is called Dying for a Cure.

The campaign is asking cancer charities and the general public to back a petition calling for an overhaul of cancer drug development, to speed up progress in developing affordable and effective cancer treatments by placing less emphasis on generating huge profits.

You can find out more about the Dying for a Cure campaign and how you can back the petition at http://dyingforacure.org.

Anonymous
  • FormerMember
    FormerMember

    What an inspiring blog John-p, your wife would be proud x I will sign the petition 

  • FormerMember
    FormerMember

    Dear John-P, I've just been diagnosed with OC, luckily caught an an early stage due to being investigated for what they thought was kidney stones after an excruciating pain episode just before Christmas. I stared chemo yesterday.

    I will sign and share your petition. Sending you virtual thoughts, hugs and prayers for you. Clare

  • FormerMember
    FormerMember

    Thank you everyone who has supported this campaign so far.  Over 1200 people have already signed the petition and today a letter from the campaign was sent to the Secretary of State for Health, Jeremy Hunt, setting out the issues and sharing with him a very powerful sample of the comments from supporters.

    It is madness that cancer drugs are being developed and priced to maximise profits rather than maximise the number of lives saved, while so many people are suffering and dying for a cure. And a real kick in the teeth after everything the public has done to help fund more cancer research, when new drugs that result from this research are being sold back to us at prices the NHS can't afford, even when R&D costs have already been paid back many times over!

    This is an industry that is out of control and intent on achieving its ambitious objectives at any cost, even when the price is loss of life.  The Government can't turn a blind eye to this forever.  Please everyone, take a look at the campaign website (http:/.../a>) and consider signing the petition.

    John