My fight with Glioblastoma

  • 2nd of November update

    FormerMember
    FormerMember

    Had my monthly chemo oncologist appointment today and it was the worse news I have had for 6 months

    My white blood cell count dropped and is just above the abnormal range at 1.66 but I can still go on chemo next week but it looks like I will have to give it 30 days in between cycles rather than 23.

    Platelets were fine so just need to keep fighting and have lots of rest

  • October 18th update,

    FormerMember
    FormerMember

    It has been over 16 months now since I was first diagnosed with a GBM and 13 months since I had my second removal.

    I have now just completed my 14th cycle of 5/23 of Chemo and my last MRI 3 weeks ago showed another slight reduction in the cavity of where the tumour was.

    Even though I have my good and bad days with tiredness, I am feeling as good as I have in the last 12 months. I changed my diet and included foods rich…

  • 25th of May update

    FormerMember
    FormerMember

    I just finished the week of Temolozide. Every month my tiredness and nausea gets slightly worse (slept into 11am this morning). Didn’t leave the house for anything this week as too tired.

    Next week I should slowly get better and then have two good weeks before we start the chemo ground hog month again. 

  • 18th of May update

    FormerMember
    FormerMember

    I had an appointment today with my Chemotherapy oncologist to check my bloods and see if I can have chemo next week.

    My platelets were 136(need to be above 100) and they had been as low as 108 3 months ago

    My white and red cell counts were good as was all my vital organs 

    So next week I start my 9th month of double chemo which will then lead into my next MRI which is on the 19th of June 

    This will be exactly…

  • Things I am leaving for my wife and kids

    FormerMember
    FormerMember

    Things that I have done and put aside for my wife and kids to get after I pass away

    Wife

    • Birthday cards for the next 7 years (to 50)
    • Anniversary cards up to 10 years ( married August last year).
    • Traditional anniversary gifts for 10 years.
    • Teddy bear (you build them at a shop) with a voice message from me …