I have been chasing my insurance claim now for a while and even given them the information they want, now they may have to verify the letter emailed to them on headed paper from the hospital - on top of that this insurance company have written to my daughter who is 23 to see if she wants to leave something to her family when she is gone, this is a policy for over 50's.
I headed off to my appointment for the results of my CT scan, up until now I have kept myself mostly positive. OK my eyes leaked a little bit yesterday when I met the cancer nurse to discuss the way forward, but I still came out feeling positive. I was called in, not by my consultant but by his registrar, who from the off convinced me that she did not know what I was doing there or what she was talking about. Firstly she stated that I had started Chemo yesterday - No I didn't this is next week. Then she asked why my appointments were out of sync - what sync is that, I told her that I did not know what she was talking about and that I was there for the results of my CT Scan. I guess she had not read my notes and was waiting for me to give her information that I was not equipped to do. She must have left her bedside matter at well her bedside? She was reading the file as I was there, clearly unprepared for what she was going to talk to me about, this is only a very large worrying part of my life, why should she be prepared to show me some respect and know what she was talking about to put my mind at rest, one way or the other.
So, it appears you have a shadow on your liver which they are concerned about and it may have gone to your bones and you need another scan............. I asked if this took in to account the cyst I had already told them about on my liver. The answer came "Ummm, hang on let me look at the scan, I will be back in a minute" leaving the image on the computer screen. She came back with the cancer nurse, who sat beside me. When it became too much to bear I told the registrar that I had enough and didn't want to hear anymore, I was there for their guidance and it was quite obvious that she was not prepared for what she was trying to tell me.
Thank goodness for Macmillan! I was crying my eyes out on the way home and pulled over in a lay-by and called the phone number. Barely being able to talk I blurted out how helpless I felt and that the person I had just seen made me feel as if it was all pointless. I understand that the medical profession are busy, but this is my life and for me to have confidence in them looking after me why would I not expect them to be prepared for a meeting? I spoke to the lovely lady at Macmillan and then with a Macmillan Nurse. I started to feel the warm sun on me through the car window and looked at the green fields around me.
I went to my friends who treated me to KFC, a hug and a chat. My specialist nurse called me and we had a chat. The report did suggest that due to prior history of cysts this could also be a cyst, but they wanted to be sure, they had to rule it out - so a scan has been asked for and if this is inconclusive another biopsy. On top of this she confirmed that my lungs are clear and all other soft tissue is clear.
Today has got better, but it did not have to be as bad as it was. I may have a glass of wine! I love my friend!
