After coming home from hospital I still felt pretty ill. The anti-sickness tablets were controlling the sickness by the time I came home and I felt increasingly nauseous when another tablet was due, so I knew they were working. It was like having flu, and I dozed a lot. My face around my eyes was swollen at one stage. My vision was very blurry, and I found it very difficult to focus on anything. I wasn't expecting this as a side effect - something to ask the consultant about next time. It got better in a couple of days.
While I was going through the worst part I did feel quite low emotionally because I felt it was worse than I had been expecting, and I had no idea how long that part would last. However, Saturday afternoon was a turning point (cycle day 4, althgough only day 3 of being ill) and I noticed I was definitely improving and suddenly I felt as if chemo was doable after all. Two and a half days of feeling awful before improving doesn't seem that bad, and another cycle, God willing, I will know that there is light at the end of the tunnel.
For a few days I felt weak, woosy and wobbly and kind of swimmy.
Since then I have improved, some days gradually and some days markedly. Now, a week and a bit on, I would say I am 'ok'. I think I have to get used to a new 'normal' for me - slightly odd feeling all the time, slightly nauseous and sensitive to smells - but OK.
In fact, I'm now on quite a high with all the support we have recieved this week - flowers, meals, visits, gifts, help with the children, texts, cards, not to mention thoughts and prayers for us - this is like a huge, warm, cuddly cussion and it feels amazing.
