The Butterfly Who Flapped Too Hard

  • Pain - some thoughts, experiences, and musings

    I was asked my opinion on pain on another blog post, in one of the comments - and I thought that the reply warranted its own post. So, here we are.

    Pain, sucks.

    It's really that simple, and in my own opinion, I'd say it's the worst thing about this disease when it's all looked at as a whole. For myself, the pain is what's stopping me from; going out and doing things, cleaning my house, enjoying things when I am out…

  • Superpower Watch - Part 3

    Day 2 - Addendum

    It seems that the wings we are hoping Patient L will grow, may be of avian origin. The reason - last night she built a nest upon a chair rather than sleeping in the bed. It seems she could not get comfortable lying on the bed, regardless of how it was set or number and position of pillows. Only in the chair, lined with a blanket and softened by pillows could she find a few moments of 'sweet relief…

  • You couldn't make this up!

    Googlemuma, don't read this post. lol. It'll ruin the feel good vibes you got from the last post!

    So! The last blog post I did had me waiting for an appointment for a Hysteroscopy. Well, it turns out the doc put through the appointment as urgent, so I was seen yesterday for everything. The St James in Leeds really needs to update and decorate some of the older parts, because when you're used to the cancer wing…

  • You're too fat. Exercise more.

    I swear, if one more medical professional says something along the lines of the title of this to me, then I may just open my mouth and scream at them long and hard.

    So, I've always been bigger than my peers both in height and width. Looking back at pictures of me, it's mostly my build that does it as I am 5' 10", with a 63cm circumference head, and really broad shoulders. I always felt bigger than everyone I was in class…

  • Absolutely incredulous!

    So, I have a real problem sometimes getting my meds from the pharmacy. I've no idea why this is a problem, because it should be a really simple procedure.


    • They call me and ask what I want.
    • I tell them.
    • They ask for my scripts from the doc.
    • Doc sends them over.
    • They fill them out.
    • They deliver them to me on the pre-asigned day.


    Simple right? Apparently not!