Having a cystoscopy

2 minute read time.

I have had a fortunate life of good health up to now.  Never smoked, drank moderately and take plenty of exercise, mostly mountain walking with some cycling.  Out of the blue my urine turned brownish-red one day in January 2017.  I let this go for a couple of days and then went to my doctor, taking a sample of urine with me.  The doctor was able to test the urine and confirmed that I had blood in it.  He referred me to the hospital where I was given an appointment in a couple of weeks time.

I was apprehensive about having a cystoscopy.  This is where a tube with camera is fed up from the penis past the prostate and on into the bladder.  A local anaesthetic was given and I was able to watch the TV screen showing what the camera was seeing as it was fed up the urethra.  It was a very curious sensation watching pictures of my own insides.  The expectation was that they would find an enlarged prostate but there was no evidence of this.  After the cystoscopy the doctor felt up my back passage and was able to confirm that the prostate was in fact quite small, so no worries there.

In the bladder the camera panned around and I spotted a curious flower like structure, very different to the bladder wall.  I said "what's that?".  The doctor said we would come back to that and carried on looking around to check whether there was anything else.  There wasn't.  The growth I had seen was similar to a cauliflower and the doctor said it was around 1-2 cm in size.

After the camera was withdrawn and I had a wash, I was able to speak in a relaxed fashion to a Macmillan nurse.  This was an extremely useful discussion about what would come next.  The answer was an operation accessing the bladder in the same way but under a general or spinal anaesthetic to cut out the cancer.  As I type this I am due to go into hospital for this operation (TURBT - trans urethral resection of bladder tumour) tomorrow.  Plenty more anxiety but the Harrogate hospital staff have been excellent so far at alleviating such feelings.

So more to follow but how was the cystoscopy?  The answer was that this was mildly uncomfortable especially as the camera passed through the sphincter that holds back the urine until you pee.  In the week following the cystoscopy there was some slight pain passing urine but by the end of the week that disappeared.  Overall not too bad an experience.  Fingers crossed for the next bit.

Anonymous
  • FormerMember
    FormerMember

    hi ian64,welcome to the group, Your experience is almost identical to mine and i am also 64, i also had a turbt which in my experience under general unaesthetic was painless and i was able to go home after one nights stay in hospital. This was followed up by another turbt about six weeks later because all the tumors had not been removed the first time, i have no idea how many i had and did not ask at the time,anyway roughly six weeks later i started a course of bcg which was administered through a catheter into the bladder by way of the penis every week for six weeks followed by a six week break then a further three doses over the next three weeks, again i found this easy to cope with as i only had one or two occasions when i had very mild flu like symptoms which are apparently quite common ,i am now waiting for a follow up cystoscopy to find out if the treatment is working and fingers crossed if it is then twelve weeks after the last bcg i will have three weekly doses of what is classed maintenance bcg fingers crossed for that.  Good luck with your turbt if your experience is the same as mine which i am sure it will be then there is nothing to worry about. Good luck again.