Anyone heard of this?

1 minute read time.

I haven't blogged for a while, but I'm hoping someone may have some feedback on this problem. Dad is having very disturbed nights, where he sleeps quite soundly for about 4 hours, then spends the next however-many hours dozing and disoriented, mumbling in his sleep, and sometimes not knowing where he is. He's then absolutely worn out and distressed the next day. Often he then spends most of the day sleeping. Of course, during the night he also disturbs Mum, who gets up and makes tea, etc to try to help. She's looking really drained. He's taking a low dose, slow-release morphine tablet twice a day to 'help with his breathing' - could this be causing the problems?

I think in the back of my mind I'm worried that it's the lung cancer spreading and causing him these problems - or am I just being stupid? Does anyone have any experience of this?

On a positive note, we were able to take him to a family party on Saturday - just for a couple of hours, so he didn't get too tired. It was a huge confidence boost for him and Mum, an excuse to dress up and get out of the house for a bit. However, some of the 'friends' at the event seemed reluctant to come to speak to him, which made me very cross. it's not as if they're going to catch anything! I'm amazed by how insensitive people can be. I appreciate that they may be embarrassed, or not know what to say, but it doesn't take much effort to say hello does it?

I'll stop now before I shock the office by bursting into tears at the thought of what this cruel b***dy disease is doing to him (and those around him).

Anonymous
  • FormerMember
    FormerMember

    Hi Val,

    Glad Mum & Dad got out and I am sorry that some of their friends were too embarassed or worried about what to say and prevented them from just popping over for a hello.

    Can't help on the disturbed sleep front, I've been having that since January after brain surgery - apparently when I am asleep I am still tossing and turning and disturbing the hubby & dogs!!

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    Hi Debs

    Thanks for your support - have been loving your recent blogs with photos. What lovely looking children you have, they must take after their Mum X Hope the cold continues to improve - have they given you the flu jab yet?

    Love and hugs

    Val X

  • FormerMember
    FormerMember

    Hi Val,  your dad could be suffering side effects of the morphine.  Have a word with your doctor the dose may need to be lowered.  Sorry to hear about your insentive friends but we can learn from them. We can see that that is not the way to act.  Cancer is a horrible, horrible disease.  Can't believe how our family as been effected by it in the last 4 years.  1st my uncle had prostrate cancer, this went to bone cancer and he died 2 years ago. I lost my mom last year to bowel cancer, she kept ignoring symtoms and wouldn't go to doctor.  Dad has recently been diagnosed with prostrate cancer but he has caught it early.  My brother who is 45 has recently been diagnosed with mouth cancer.  Like mom he has not gone to doctor soon enough.  The cancer is inside of left cheek, soft palate and lumph nodes in his neck.. He is losing weight.  On Wed we see his consultant to see how bad his cancer is and discuss a possible 10 hour operation.  Your right cancer really SUCKS.  Regards Marie who is feeling fed up

  • FormerMember
    FormerMember

    hi val hope you are keeping your own strength up as for the mumbling etc could be the morphine

    don't worry about the friends not talking to your dad many people have lost friends and family to this horrible disease it may be yes they were embarrassed or he brought back memories of the loved ones they have lost and they were falling apart inside but like you had to put on a brave face

  • FormerMember
    FormerMember

    Hi Val,  I haven't been on the site for a while but may be able to help answer some of your questions.  I think as Darren said that the mumbling and disoriention is a side effect of his medication.  With regards to the exhaustion and dozing, this I'm afraid is part of the cancer, the body becomes so exhausted fighting it, that they just cannot stay awake.  My Dad eventually for a long time was awake sometimes for only 1 hour per day  and then had to be woken later in the day for food and medication (he was given steriods for a while which boosted his appetite)  He did not like the taste of the 'build up' drinks he was offered.  With regards to friends not speaking to him as normal, I'm afraid some people do find serious illness very difficult to deal with - I think once you have experienced it, if you know someone is very seriously ill, you make a point of saying hello and having a little chat - it is one of those things that you learn as you go through life, some people are strong, others are not so.  With regards to your Mum, i think you should chat to the Macmillan Nurse (i assume you have one !) and ask her to have a chat with your mum - she may be able to 'unburden' any worries she may have, without worrying or upsetting you.    Life can be really tough at times and I wish you all the very best in the future and the tough times ahead of you.

    Big Hug

    Debie