7 weeks down

4 minute read time.

So here we are 7 weeks down and 2EC’s in

Where are we at? I’m sent to Echocardiogram just before the second Chemo, and I’m a little worried as I have genetic link to heart disease although I have no direct concerns but I am 48 appear to have high BP, this is my first heart scan so hoping no surprises pop up! How the mind plays tricks! My Dr have noted high BP but as I have moved around every 2 years for the past 25 so consistency with Dr is not a thing and I am not very good at seeing them tbh! I usually feel fit and fine and readings have been brushed off as white coat syndrome! Is my health a cost of following Hubby and supporting his career where he is given good thorough MOT’s……never though so until now! 

Oncologist calls 2 days before second session, heart looks good heart rate a bit high but what with stress, no secret there, heart is good……phew. I tell her about BP, I’m to do 7 day at home reading to take to Gp, 

Second session goes much like the first, they didn’t want hubby to stay but they didn’t ask home to leave, ironic really that due to Covid, they don’t want partners to stay in a sterile area with person they live with but happy for them to go to public place like canteen etc, surly it’s safer all round to stay in one place socially distanced from other patients and that will be cleaned after we leave….maybe I’m wrong! I have a heat pad on my arm and my vein pops up like a little soldier although the nurse chooses the back of hand and proceeds to prodding me like she’s picking an pickle up with a toothpick and hits a valve in the vein, nope not so good, she explains about some veins having valves and it’s possible to damage it, ya think, she give me a lovely bruise and moves up the arm, same vein but higher up. It goes in thankfully! Dragon blood and other meds go in a little quicker this time, think they do the first slower to see if there is a reaction. Cold cap feels harder this time round but we stick with it. Same routine as last time, I collect my injection and arm cream and off home we go. I feel fine over the next few days a little nauseous but not so much to take medication, Hubby does injection this time, and yes did feel it, but big girl pants on and it was ok. Having trouble going to the loo, I feel bloated and praying to not repeat last months experience, I drink lots, try half a laxative, I’m scared….. slowly over next few days system returns to sort of normal, I’m a little tired but not as much as last month, I have some aches and pains but the weather is great so we’ve been out walking getting steps in. I’m on an emotional roller coaster with other crap that’s been happening but walking really really helps! 

Hair, well, it’s deserting me! It started a few days before this second cycle and has thinned conciderably, but other than a patch over one ear it had shed quite evenly. I have had a wig fitting which was ok, but I had expected a different experience with many having a laugh and trying loads on but I was shown one much like the colour of my highlights and length of my own, the lady said I could wait another 3 weeks and she would order one with some dark in and come back, I try one other really dark which washes my skin out and I look poorly, so opt for the blonde, it’s not bad, it’s a full head of hair, much fuller than my own before treatment, if you didn’t know me, it’s a good wig, I’m okay with it and may even get it styled by hairdresser to soften it. I’m not quite there yet. After looking for advice on FB support group SHEIN is recommended for cheaper wigs and pictures posted look good so I’ve ordered 2 cheap ones and if they are rubbish then they will go  in the fancy dress box, no biggy! I’m playing with scarves, hats and baseball caps. Funny how on holiday, you feel fine in a hat, here in UK it just feels odd! 

I’m a week away from round 3 and yesterday had a Mamogramme and ultrasound, and I am extremely thankful that the tumor had shrunk, I’m yet to speak to the Oncologist but the radiographer said she measures it at 13mm, it was 30! Dragon juice is doing what it’s does and I’m asking please continue to slay the enemy! 

So thankful to live in a time and place we have treatment available, we are turning this shit and all the rest around! 

Anonymous
  • I’m so pleased the tumour has shrunk so much! I’m only at my first EC and on day 7 . Feel ok just very emotional. Trying to do as much walking as possible. I  tried the cold cap and have a wig ready to use. Just seem to be waiting for the hair to fall out ! I’m sure it probably causes more anxiety waiting, than having it shaved off as originally planned. Let’s se what happens x

  • Thank you for your comment, just had round 3 today. 

    Try and take one day at a time, that’s what I am doing. The week leading upto the next treatment I almost forget what’s going on albeit I’m off work and try to keep distanced from people. It can be very emotional with hair loss, I’ve certainly shed a few tears. Mine did not come out in clumps but there was a period of lots coming out both in my hairbrush and general shedding everywhere. It has now slowed and the loss appears to be even throughout apart from a small patch by my ear, what’s there is grey as i can’t get roots dyed. I cold capped today and took two paracetamol which I think helped. 

    I really do hope you are doing ok. 

    xx