tr0gl0dite's blog

Things are finally happening. The funding for my sister to donate in Australia has been agreed and I have a new provisional date. We are just waiting for confirmation from the Australian hospital. I have been back to the hospital several times for lots of tests, these were not hard or painful they just involved lots of waiting around - see details below if you are interested. The lung function test is all about blowing…

I am getting really frustrated. I was at the hospital again yesterday and checked on the progress of my appeal for funding; no update, it is still with the commissioner’s panel. The results of my brother’s compatibility test have not come through yet and could be another week. It is looking more likely that the transplant date of early May will end up being put back which is the last thing I want. There is a lot of…

Aagghhhhh I have spent ages trying to talk to someone at my local PCT regading the funding for my transplant. Each day I call in the morning, I call again around lunch time and then again in the afternoon. I speak to lots of voice mail boxes and leave lots of messages but no-one has attempted to get in touch. Today I spoke to the health service ombudsman who gave me the details of the chief executive of the PCT and…

Not much seems to be happening from a hospital front, I have had an email saying they received the blood from my sister and are getting it tested but that is as far as progress has gone. I have another appointment next week so maybe I will find out more then. I also have a normal clinic appointment next week; I will only have been back on the drugs for 3 weeks by then so am not expecting any surprises in the blood counts…

Firstly thanks Comkick I appreciate the support, to clear up the point you made - yes I am having a mini transplant or using the hospital terminology "reduced intensity peripheral blood stem cell transplant" now isn't that a tongue twister if ever there was one! Secondly, hooray one of the things that has been causing me stress is finally being sorted out. As previously stated my sister lives in Australia and will be…