Its all happened so fast

1 minute read time.

A month ago I was working. Now that is all I may have left to live.

About six weeks ago I began getting headaches - not all the time and not in any specific area, occasionally accompanied by very brief spells of 'uncertainty'. These spells always happened when standing up. I never even thought that I shouldn't be driving.A month ago at work I was walking along and suddenly didn't know where to put my foot down or what to do next. I looked around, foot still in the air, to see a workmate looking at me and asking if i was all right.

Off to A&E where a quick assessment had me booked into TIA outpatients next day.Head CT revealed a tumour,possibly 2 together, and chest x-ray revealed a lung tumour. Taken directly to Frenchay neurological unit in Bristol and on wednesday, had a third ventriculostomy to  relieve hydrocephaly. Up and walking within hours and feeling great.home again Thursday evening.

Now 25 days after the first big event I am told its a 3cm tumour in the cerebellum with 4 other significant growths nearby and several other small growths dotted around.It's untreatable I am looking at a few months (average) to go.

 

 

Anonymous
  • FormerMember
    FormerMember

    Tom, just read your blog and omg how awful, this bloody disease is so sly and i dont trust it one bit, mine was a shock too, but nothing like yours, just wanted to say im thinking of you and yours and lets hope something can be done you sound positive please remain so even tho i know its hard, i expect the same things have gone through your head same as all of ours on here?????   Its a nasty cruel disease and im sure it picks on the good decent people like us!

    Love n Hugs

    Jill