The continual bearer of bad news ....

5 minute read time.

So, this is me - overly enthusiastic and hyped. Sometimes a major irritant to people with my boundless energy and enthusiasm for life. I'm the uber optimist ! So understandably sharing bad news does not come naturally to me - and for the last two days I have left friends in tears and feeling bad when I chirp away that I've had bad news, I'm going to need you to be there for my kids but don't worry I'm all Charlie Sheen about this - WINNING!!

Around late March  I first noticed a small hard lump in my breast, I said to myself don't worry about it , give it a week and if not see a GP. I've no time to be ill !! A week later I noticed a larger hard swelling in my armpit and again so, well you've had a flu virus it's probably just my glands it'll pass.

I resisted my usual urges to Google search symptoms - that's a first! And carried on with the manic life I choose to lead. A couple of weeks passed and my breast felt tender and I thought, actually I need to get this checked.Bold as brass I whipped my top off to the horror of the Gp - I jest ! My humour is a coping strategy :) he referred me to Breast Clinic, even then I was like it could just be because I've had a virus right ? I should explain that I also have silicone implants so I guess partially I was thinking they may have ruptured and that worry of cost was present.How ridiculous that sounds now !

My first appointment at Breast Clinic was somewhat different to what I anticipated, I naively thought I'd have a mammogram, nooo I had the full works, very impressive. Consultation, mammogram, which showed silicone and nothing else ! Very hard by the way to move silicone in the same was as normal soft breast tissue, mine are like rubber bumpers lol All you lovely ladies with soft boobies are easier to scan :)

Ultrasound followed with a core biopsy to lymph node in left armpit measuring about 3.7 and fine needle analysis ? in my 2 smaller lumps in my left breast 1.5 and 2.2 ...two !! Seriously !! I knew that they would come back for a further biopsy there if they couldn't see enough from the FNA , they already informed me of that but warned me it may rupture my silicone - as if that is really going to matter if you are dealing with cancerous cells?? - but guess if it had been all clear and your breast deflated you would have been a lil p****ed with that intervention.

A day before my appointment for results, I was called by the specialist breast nurse to book me in for an urgent MRI, I was extremely suspicious and questioned my results, she repiled, they were inconclusive today but that might change by tomorrow - HA ! The great white lie - having supported my mother through Leukaemia I know how these little bends of the truth emerge. Where I had refrained from googling anything, suddenly I felt compelled to search why MRI is used in diagnostics and had my doubts confirmed , for severity of cancer but also if there are silicone implants for clarity.

My gut instincts told me the next day was going to have a conversation that went two ways, we have bad news or we need to test you further. I got both. My very lovely consultant said , we've looked at the results from your biopsy and it's not good news. My instinct to be strong and require facts kicked in , but as they then added they wanted to do a bone scan tomorrow my tears fell. The panicked thought it could be even worse jumped up at me.I am a single mother of two amazing teenagers and suddenly I felt how will I tell them ??

Anything else really relevant from that meeting disappeared - they were amazingly supportive, I used my standard humour strategy to lighten the mood but dissolved into tears whilst having blood taken, don't normally cry over a small prick -poor guy wasn't his fault. I was blessed to have a best friend with me who was able to absorb information, as my brain was stuck on the , it's not good.

So here I am 2 days later, yesterday I was full of radiation and dye so my bones and major organs were scanned. I've another biopsy in the breast tissue next week and an MRI, all my results then go to the multi disciplinary panel for treatment planning and they will discuss this with me on the 17th.The problem is the pesky cancerous cells in my lymphatic system, that tumour in my pit isn't the primal tumour and it's broken off and come from somewhere else. Ideally my breast so is a self contained area, rip it off and pump me with chemo I guess. Crude description I know. But the horrible knawing fear I am trying to ignore (hence blogging distraction) is that it's in my bones.

I talked chemo with my nurse, I'm young (relatively) so guess that's my treatment option before surgery and hell yeah, blast the heck out of anything else remotely cancerous in my body please. I've been there and seen that with my mum so think bring it on, seriously why would anyone refuse treatment that can extend or preserve life ?

Know what the weirdest thing right now - I feel well - that's a good thing I know and am grateful, but I'm preparing for the unknown. My control freak nature is implementing contingency plans - who can walk the dog, who will wash up etc - stupid things, in preparation for the fatigue of chemo and surgery.I'm preparing for when I won't be the 100 mile an hour person that everyone knows I am and whilst I can postively acknowledge that actually maybe it's an enforced lifestyle change that will benefit me in the long run ..maybe learning to care for me a bit better without developing cancer would have been the preferred option.

My heart breaks when I think how I will share this news with my kids -

 

 

 

 

 

Anonymous
  • FormerMember
    FormerMember

    Hi Sassy,

    Just want to say love your blog , not about the cancer but the way you are dealing with things well done, keep it up and I know you will do well.

    Good luck with everything, let us know how you get on.

    Pam x 

  • FormerMember
    FormerMember

    Hi there,

    You are talking to your 100 mile an hour humour loving twin... but a bit further down the road than you. I can't tell you much at the moment except that you learn to slow down and you learn that maybe that is a good thing but you do not have to lose your sense of humour or your positivity. My take on it is having cancer is crap enough without being miserable too.

    Of course you will cry and all that too but it can be ok once you get your head round it all and you know what you are dealing with etc. The waiting and not knowing are the worst.

    Kids are very resilient and often deal with these things better than us. Your attitude will have rubbed off on them and they be ok with it.. They have probably have guessed something is up already....

    And don't panic!! I was scanned and prodded everywhere and then oh we need to do more, we think it might have spread to your liver, and then oh we need to biopsy these lymphs and oh we ... blah blah.... they were either negative or inconclusive and I am still here! So checking doesn't always mean finding...

    Anyway, let us know how you get on with the tests and we are here to hold your hand on the bumps along the way...

    Little My xxx

  • FormerMember
    FormerMember

    Hey Pam ,

    Thank you for your positive reply :) Inbuilt humour is so under rated :) I find it helps diffuse all my cr*ppy situations :)

    Sassy xo

  • FormerMember
    FormerMember

    Little My - Thank you !! See a positive of this experience is meeting kindred spirits :)

    It's a weird place diagnostic limbo and leaves me questioning lots of things especially my brain :)  Like for example this time last week I had a hard lump in my armpit and no diagnostic label so was happily staying up till 4am oblivious ..and now I'm like enjoy it while you can ? Shouldn't that be our over arching theme anyway ?

    I mean until they tie me down and stop me doing things, why should I ? And until my body says slow down should I ? Does this make sense ? It's like downsizing , I usually juggle too many balls and I'm thinking should I just carry on juggling until they decide what treatment they are giving me or start dropping some balls now ? Control freak much ?? LOL

    Geez my brain is overworking - maybe that's the first thing I need to slow down!!

    I'll keep you posted on those results- would love to know more about how you learnt to slow it down whenever you have the time :)

    United in humour my fast paced twin xxx

     

  • FormerMember
    FormerMember

    Hi sassy,

    The psychology bit is funny. I found myself feeling a lot more tired after they told me I had cancer than before, yet judging by the size of my tumour, I had merrily been running round working and doing everything 10 tot he dozen for a long time!

    When I first had the camera thing and they saw the tumour, she said to me about all the tests that would then happen and that I could go off work on a sick note if I wanted.

    I said 'Do I have to?' and she said, well no, I just thought you might like to....

    So, my take on it was that I had been fine and working and doing everything i wanted up to that point, so why not carry on? People said I was being brave, but my thought was well what else am I to do? Go to bed and pull the covers over and wait to die? So, I carried on and exercised as best I could to get myself fit for the operation I had to have before I could start treatment.

    It took 2 months to get to starting treatment and by this stage the pain was getting a lot worse so I couldn't walk so far etc but I did keep trying to keep fit etc. It was a funny thing for me, but I sort of marvelled at the idea that I was walking up the hill that people struggled with and I had cancer...

    Of course, the pain started to slow me down a bit (though hopefully you won't get the pain the same as me) and I did get more tired.

    I was due to take a class of 15 year olds camping for the week when I found out and they said I probably couldn't go as I would be having scans etc then. anyway, there was only one scan booked for that week so I thought oh sod it and went. I took an extra colleague with me so I didn't have the pressure and could have a break if needed etc and off we went. I drove back for the scan and went back to the camp afterwards. When I got back, the consultant asked me what I had been doing and I told him about the camping trip wincing thinking he was going to tell me off and he said 'did you enjoy it?' I said yes and he said Well, that's what matters. Attitude plays a huge part in this disease so good on you!

    As my treatment started, I had to slow down as ops stop you moving and I got very sleepy and the chemo side effects etc. You sort of go with the flow and somehow the treatments fill your days and that becomes your focus. Some days I thought I would die of boredom, but that passess and you find new things to do, even if its blabbing rubbish on this site!!

    I would say, do what you feel you want to do. Don't try and cram too much in and do double, but don't stop either. Do some fun things and continue to do the things you enjoy as some may have to stop for a while. I went for a swim the night before my latest op as I knew that would be it for a couple of months... but don't go mad trying to do everything eiether!

    I had radiotherapy for 6 weeks and got very burned so couldn't walk very well etc but i had set myself a goal that I would walk to the car for my lift at the bottom of the lane every day. It wasn't far but I felt like if I could do that, i was ok. I did it everyday! But if I couldn't have, it wouldn't have mattered.

    Oh dear, I am rambling on now. I told you I was whizzy too and I can type as quick as I can think so sorry about that.

    Just to say I wrote a huge contingency plan, for work and home and kids etc, some of it before I was even diagnosed haha. It came in useful so that's a good thing. No harm in thinking how to sort a few things as long as it doesn't get you in a tizz.

    And lastly, if you are anything like me, you won't like to ask for help. My friends got up a rota to take me to RT every day. (90 mile round trip) and i struggled with asking. My friend put it like this. She said we love you  and feel so useless and wish we could do something. Being able to give you a lift or cook a meal or something makes us feel like we are doing something to help and that helps us, so please let us do things as it helps us! Wise words and I would recommend taking all the help you can get. Especially with kids.

    Ok, that's enough!

    big hug to you

    Little My xxx