Well tomorro the 23rd July i have been called in for my much awaited but dreaded PET scan to try and determine the Primary site of my cancer which has been found as a secondary in my lymph node in my neck!
You guys will know exactly what im feeling and this site really helps at times like this i try not to burden my daughters with every little thing as they are going through their own turmoil. It just helps to be able to type on my pc and try and be positive and hear all the good stories on here and have such lovely support from fellow sufferers!
I l keep you posted on the results!
Jill
(TLA)
FormerMember
Hi everyone,
Well i got my results yesterday from the PET Scan to be told that they thought i had the primary cancer in my left tonsil which was very rare especially in someone so young (liked that bit lol) and quite fit!!!!
So..........now going in hospital tomorro for tonsilectomy, then 6 weeks of radical radiotherapy and chemo once a week for the six weeks running concurrent with the radiotherapy! Have to have a peg fitted to my stomach to feed me cos they say i wont be able to swallow when the radiotherapy starts to kick in!!! Thats gonna be weird not being able to eat solids!!!!!! I have already told my daughters i l be in their size 8 clothes soon lol !!!!!! If the tonsil isnt cancerous they will treat me from head to chest bone both sides with the the radio etc which would mean i will have no salavery glands as they will be destroyed with the treatment and will suffer with a dry mouth for ever, and will need to have constant drinks of water with me.
You cant really imagine what its gonna be like so im just going to wait and see take each day and deal with it, the reality of all this is starting to sink in now so feeling a bit tearful today, especially when i see my three daughters being so kind, caring and compassionate about the whole thing i just think they dont deserve this to happen to them, although they are grown up they are just starting their lives with partners etc and Amber is still studying they shouldnt have to have this going on in their young lives!!!!! That in itself urges me along to be strong and fight the fight as im sure you l all agree???
i have just sent you a pm too ........you're bound to be low and tearful today hun you've had a huge amount to take on board ....but you'll be back to your strong positive self in no time at all and ready to kick the cancers a**e to the ground :O)
wishing you all the very best of luck for tommorrow ,your girls will be fine hun ,don't worry about that ,you save all that energy for getting better !!!!
hi jill best wishes for to morrow ,you will be fine radiotherapy will make you tired ,so when tired ,rest ..the peg will be a bit sore for afew days ,the dry mouth you get used to ,i carry bottle of water every were i go ,you must really look after your teeth because prone to dental problems with dry mouth you will be ok gerard
