Today we begin

2 minute read time.

So finely after a couple of false starts here we are at Southampton general about to begin what we hope will be the end of petes fight. Diagnosed with what is known in layman's terms as testicular cancer in his chest (none in his testicles) in may 2013 Pete underwent 4 lots of bep chemo. Each cycle lasted 2 days, with chemo being administered on days 1-5 & 13. This took us from July through to October & in November tumour was removed. This we had hoped was the end of petes journey. Unfortunately 23rd December I received the dreaded call to say petes markers were going up again & the oncologist needed to bring petes next appointment forward.  Now you may think I'm being calus or trying to play god but a made a very conscious choice to inform Pete of my telephone conversation until after Christmas.  Some people have said I had no business doing so or that it wasn't my place to make that decision but who else can decide if he can have a relaxed chilled out enjoyable Christmas or a stressed out one with the fear of what is to come hanging over him? God knows the cancer had taken over & ruined his whole summer. I at least thought he deserved a few days at Christmas.  I did of course tell him on Dec 27th & as much as he was annoyed I'd carried the knowledge alone of Christmas he understood & was great full for the short lived respite & the wonderful Christmas we had. Early January his oncologist decided to put Pete on tip chemotherapy,  even though scans etc... couldn't see cancer anywhere. 5 days later Pete came out of hospital with the knowledge that it was now in his lungs & liver. Chemo continued.  This time for 5 days with a 16 day break in between but after 2nd cycle we were told stem cell transplant was a high possibility. So before his 3rd cycle was due it was decided set was the only way 2 go & he was referred to Prof Johnson... although I doubt we'll ever meet him. We met with Dr Davies 3 weeks ago who dropped the bomb she'll that Pete would be having not 1 but 3 stem cell transplants,  1 directly after the other, assuming each 1 works according to plan. So having been harvested,  missing his admission date last Tues due to gastroenteritis & missing this Tues admission due to lack of a bed here we are. A phone call at 5 pm last night saying bed is ready he was to be admitted right away. As we live 50 miles from hospital & we were out making the most of the last of his freedom for a while, I explained right away would be about 3hrs. We arrived to be told Pete would be put a intravenous fluids at 1am to hydrate him ready for today's chemo & all the other necessary tests, bloods etc.. wee done. We do have an advantage to most as his bed is on teenage & young adult ward right now. So this means I can stay with him in his room. Not sure how long he will be here though as it's not climate controlled,  So the time will come when I have to leave him. Making the most of being here for him now though & I know it's made his night more comfortable & he has slept, even if I haven't.  

Anonymous
  • FormerMember
    FormerMember

    Hi Lorraine,

    a very scary time for you and Pete, but I just wanted to tell you that I had my transplant at Southampton General, and if anyone can get you through this they can. They have a team of very talented and brilliant haematologists there, and you may not see much of her yet, but Joan Newman, the specialist nurse, will be invaluable to you in weeks to come!

    Also I noticed someone had made a scathing comment about transport in your other post which I hope you ignore, I live in Bournemouth (30 miles away) and have been using hospital transport regularly to get me up and down to clinic. Southampton was very firm about me using it, they are very strict but have a high success rate.

    I will be there tomorrow morning at c7 next door to the ward so will be thinking of you,

    be brave and know that this time will pass,

    love Jackie x

  • FormerMember
    FormerMember

    Thank you Jackie for posting some reassurance our way. We have met Joan but we seem to see more of Jane lamb his Co-ordinator.  We're currently sat waiting for his chemo to be made up so he can get started. Your right also about my other post & I was very annoyed at it. Who are we to judge who is more needy than someone else? We live in Dorset.  Dorchester so over 50 miles from hospital & like you hospital have been on top of transport all the time. I've even had to insist I bring him in car sometimes haha. I didn't comment on the post as didn't want the hassle it could cause but I did feel for the poor girl who asked. 

    Hope your in tomorrow for good news. Take care & thanks again xx

  • FormerMember
    FormerMember

    And so we begin. Syringe driver full of anti-sickness up & running along with fluids & now in goes the carboplatin over the next 2 hrs,  to be followed by 6hrs of etopiside.  Poor Pete must be sick of me nagging. Already made him use mouthwash & have a tiptop & he's only been wired up for 10 mins lol. Gonna be a long few days but hopefully the beginning of a new long life :-)

  • FormerMember
    FormerMember

    Day 2 of conditioning.  Didn't have to bad a night. Pete wasn't up for the loo as much as we thought he'd be. He's woken up feeling much beta than he was when he went to sleep to. He was really confused last night as chemo head came on so quickly and unexpected. Usually it starts on day 3 of 5 but I guess as he only having 3 days this time & more chemo we should have expected it. His apertites been really good so we're pleased with that & even despite the Constant fluid iv he's found himself constantly thirsty, so drinking more than usual & eating  plenty ice lollies etc... This pleases me cause he never drinks enough & I'm always nagging him. Hopefully we can continue with how things are now & it'll be a breeze but I won't hold my breath. 

  • FormerMember
    FormerMember

    So after another good night & early start today which began well I think we're on the slide. Pete ate 2 lots of breakfast & did well with the physio but has been in bed since, sleeping on & off all day. He's woken for the odd drink & a tip top but nothing since. Hopefully I can persuade him to try a little something when his chemo ends later