Potentially More Bad News - The Waiting Game Continues

2 minute read time.

So, as an aftercare precaution Rich was given a C.T scan of his whole body to check for any signs that the cancer had spread. 

Whilst we were sat in the waiting area of the C.T unit, there were some lovely people also waiting for the same thing. One of them was a lady that had been diagnosed with breast cancer three weeks before and had not yet had any treatment although she had just been advised that the cancer had spread to her bones. Whilst chatting with her she said that her husband had cancer last year and was now in remission. How cruel is it that not only one of them had to go through this, but now both of them. 

It's such a sobering situation to be in and I know its cliché but it really does make you realise what you have and that every minute of your life should be meaningful and not wasted. 

On 6th June, 2 weeks after his diagnosis and surgery Emma the McMillan nurse called with the results. As his head is still all over the place, he didn't really understand what she was saying, so I called back the following day to clarify. 

She advised that as the scan showed some swollen lymph nodes, however, as he has recent gall bladder surgery it was clear whether this was as a result of that or a result of the cancer spreading. The consultants at the Queen Elizabeth Hospital (where he was previously for 7 and a half months) were reviewing the results in a meeting this week and that he will be offered an appointment with them next week to discuss the findings and options of treatment. 

So the waiting continues. This seems harder as I said before, Rich's diagnosis to surgery journey was so short that he didn't have time to think. This 2 week wait is awful. It's not a long time in every day life but when you're faced with something like this 2 weeks feels like 2 years. So for now all we can do is wait and pray that all is well. 

Whatever the diagnosis we have been advised that the treatment is very effective, so we have that to be thankful for. 

Because he's a big brave man who doesn't need to talk about his feeling ( we all know that's bull) he's struggling internally with the news and doing everything in his power to block it out mentally, so I've signed him up for this forum in the hope that he will 1. use it and 2. find the support or outlet that he needs. 

Anonymous
  • Hi there!

    First off, as another 'big, brave man' might I just say that I can appreciate how your partner may be feeling, but take it from me - and please tell your partner - men DO cry and REAL MEN can talk about their true feelings too!

    I have recently been diagnosed with Linitis Plastica (a form of Stomach Cancer) and am awaiting final test results prior to having Chemo, a full Stomach removal and then more Chemo. And I have talked to loads of people about my disease, my prognosis AND my feelings! 

    I do hope your man can come around to talking about how he is feeling as I believe that by doing so he will find it easier to cope.

    I wish you both well and look forward to seeing you post a nice positive comment on here soon, once your man's health problems have been sorted out.

    XXX 

  • FormerMember
    FormerMember
    <p>Hi </p> <p>Thank you so much for your message. I&#39;m sorry that you&#39;re going through this. I spoke to my &#39;Big Brave Man&#39; and he assures me that he will cry when he&#39;s ready lol. I know I&#39;ve been a negative norma in my blog posts but reading your message and understanding how you are remaining positive has given me a kick up the ack side.</p> <p>It&#39;s good that you have found people to speak to and that you are comfortable sharing your feelings. You are an inspiration and we look forward to hearing about the rest of your journey.</p> <p>Amy and Rich</p> <p>xxx</p>
  • Hi Amy & Rich.

    I hope things are going well for you both at present?

    My final test results have come back and we are 'go' for treatment! That said, I have been away from here for a while, as I developed a blood clot in my arm, had to have my PICC Line removed and that put my Chemo back until today.

    So today, I had most of my first Chemo session. The bit with the pump which I take home was left off, because I have to have a PICC Line in for that to be given. I am due to have another line put in on August 6th and then my next Chemo on August 8th - so watch this space! :-) 

    Please try to keep positive and if I can help you to do so in any way, please let me know! :-) 

    All the best

    George.

  • FormerMember
    FormerMember

    Hi George

    It's so nice of you to message. We're so pleased that your treatment is on track, even if there have been a few hiccups on the way. 

    Rich has just completed his second cycle of chemo and is looking rather bald and bloated bless him, he's a little depressed but I think that's because he's usually so active. 

    We had a few hiccups with the QE sending him home after I rushed him there with a high temp. They said he was fine but it turned out he had neutropenic sepsis. Then they lost 2 lots of his bloods. 

    However, he's much better at the minute and hopefully only has one cycle left. 

    Are you still on track to have your next lot of chemo next week? Rich has his the week after. 

    Your positivity will help you sail through. If you need anyone to chat to we're here.

    Thanks 

    Amy and Rich

  • FormerMember
    FormerMember

    Hi Amy and Rich, 

    Just wondering how things are going?  My Mr has been through similar and he is being big and brave at the moment facing the prospect of surgery to remove a pesky lymph node in his abdomen.  It is myself that is falling apart!

    Hope all is well with you both x