dont know what has happened today but just want to eat - trouble is none of the stuff i can manage seems very filling - managed to stay awake all day and a longer walk with the dog this afternoon which will help me sleep later. Have asked my Doctor to consider reduction in pain relief through syringe driver just to give me a physical step towards weaning myself off the oxycodene (am currently on 40mg per day and have asked for it to be reduced to 30mg next week) - got to get these tubes out of me and get off the pain relief!! Will try and get dietitian to have a chat then later next week to discuss a plan to get off PEG feeds totally and get that removed too. Tried some sort of menthol sweet today but taste buds are so shot away I could hardly taste it, still the swallowing is getting easier now so should be thankful for small things,,,
