what a week

3 minute read time.

we'll where do i start ...i know monday . i had chemo ( cisplatin) which went well actually 6 hours not the expected 7 1/2 and the radio which was quick and easy . the i took the hour trip home with my boys scoffing fish and chips in the back seat ! my other half saying very kindly ' i tryed to keep your sam fritter warm' ..bless .i passed on the spam fritter but i don't think it mattered either way ,as soon as i touched down at home i was sick , very very sick until saturday when i thought i'd done really well not being sick all morning until i watched x factor and threw up when the twins come on ( seriously) .

on wednesday i went for my 3rd radiotherapy but didn't make it instead i got dropped off at a and e  after non stop vomiting , losing all strength in my arms and legs and difficulty breathing and of coarse dehydration. i must say my stay at the notoriously bad maidstone hospital was plain effing awful . i was crying so much that i wanted to get out of the smelly stinking hole that they told me to vacate the ward and sleep on a small 2 seater sofa in the day room ....nice .after being rehydrated and pumping full of any antisickness they could find ( didn't work)  i discharged myself .

went back on friday for radio again by then i couldn't even sit up in a chair , i had to be propped up with pillows in a wheelchair. the mac nurse saw me 1st and was appaulled by the fact that i was told to sleep on the sofa , she called one of the oncologists who shoock her head and said' we'll if i can't get you to stay in'  and kept on sighing . anyway the funny bit , only its not that funny really is it ..she asked the nurse to give me an antisickness jab so at least i would stop throwing up long enough to get an xray , the nurse was an inch away from giving it when she proclaimed that the drug was 4 months ot of date, but hey i should be gratefull she didn't give it to me , thats what she said.

my radio friday was cancelled . and i was sent home where i've been nursed very well and compassionatly by my boyfriend .the sweetheart had to keep a check on my bowel movements !anyway enough of that hospital  i went today and had a very short and sweet radiotherapy . but no chemo today it was cancelled . now this is where i need your words of wisdom.

i'm not sure if the reaction i had to chemo was an allergic reaction or normal chemo symptoms. i had chemo last year and was sick once , different chemo though. the mac nurse thought it was more likely an allergic reaction because i was sick straight away , but i'm not seeing my oncologist until wednesday to get her opinion . my partner seems to think i should do everything quite everything to beat this. i think enough is enough. i'm having radiotherapy so lets see what that does . am i weak ? is it giving up? i don't  want anybody turning around and saying i didn't do enough. i dunno if she asks me do i want to continue  what do i do , i never want to feel that bad again but i don't want to die . do i have to do what my mum would say and be a brave little soldier in this horrible battle , or is this soldier just battle weary .? thoughts on a postcard please xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Anonymous
  • FormerMember
    FormerMember

    My dear Sammi, what a sh-t week you've had. I've been off line for a while and still finding my way round the site! I'm sure you'll do what ever is best for you Sammi, It's your body, your life, your struggle. You've been through so much, Please give it all you've got Love and a big (((((((((((((((((hug)))))))))))))))))

  • FormerMember
    FormerMember

    Dear Sammi,

    What a time your having and i cant believe the treatment that you and others seem to be getting at the hands of some hospitals,dreadful,i realise how lucky i am to live in Edinburgh and obviously have some of the best help around.

    i hope things get better for you soon,as for the medical side of things,i dont have the slightest clue how to help you or advise you,im sorry

    Leigh xx

  • FormerMember
    FormerMember

    Sammie, yes, what an awful time you have had of it.  When I feel I just cannot take much more, I have a good cry and look forward.  At least I try to look forward.  It puts the 'awful' stuff behind me.  And once I physically feel better I can do that.  And one thing I know is that it DOES pass.  It might take awhile, but it passes.  And I do whatever I have to so that it passes.  Another thing I do is make sure that my care team is right there with me somehow.  I make phone calls, go visit them and make sure I have any med I need to get me through and 'event.'  And you'd be surprised how few meds you take when you have the comfort of knowing they are there if you need them.  And there are PLENTY of anti-emetic meds out there so that you should not have to suffer so violently.

    Hang tough...we are with you.  xx

  • FormerMember
    FormerMember

    Hi Sammy, It is really horrible to be so sick over and over! I remember once during my chemo I got so sick and weak that I didn't even realise that I had a lumber puncture, altho back to your prediciment I have a friend who is on the same chemo as you and is also very very sick with it, she was given an expensive new anti-sickness drug which seemed to help, but can't get hold of her to find the name of it, but all I know is that it is quite a new drug and very expensive, she is having nhs treatment so know it is available, perhaps yr macmillan nurse or oncologist might know?? Anyway my sweet 'don't give up, keep fighting this as we all are, we are all with you. Love Jilly xx