I thought I'd write a blog for anyone else who is diagnosed with this type of cancer.
I was diagnosed with a carcinoid tumour of the ovary in June 2010, following a miscarriage in April and an operation to remove some dermoid tumours that were found.
The carcinoid was found within one of the dermoids. On first diagnoses, I was told, that this is not a cancer that is going to kill me, and that I shouldn't need chemo, which were my first thought when hearing the word cancer. I was advised that it is extremely rare and the normal procedure would be to remove my ovary, however the only other cases have been in older ladies who had already had children. My consultant arranged some scans for me and told me that he was going to contact some carcinoid specialists for advice.
I had some blood tests, and then an MRI and CT Scan which came back OK. The timescale for these being spread over 3 months. I was told that although it is a "grey" area, that the prognoses is looking good.
Last week I went for an Octreoscan combined with CT Scan, where you are injested with some radioactive markers and have a series of scans over a couple of days. I am now waiting to get the results from this and will update.
I know that this will probably be irrellevant to most people, but even if one person, one day can see this, It will be worth it to me. As the being out of control and not knowing has been the worst part of the experience so far.
I have had so much support from my family and friends, and feel very lucky to have that, but also so frustrated at the lack of information. Trust me to get a rare one!!
