Well it turned out to be a long one today, woke up feeling totally exhausted and really did not want to wake up. Left hubby in bed as long as I could but eventually we had to go to the dreaded hospital. So along the first motorway and all was Ok, then the second motorway turned into a carpark - road works, just our luck, so eventually we got onto the third motorway and I suddenly realised that hubby was silent but as per no words needed I knew his thoughts as they weren't far off mine.
So quietly we arrive and have to go through the usual routine, long queue at reception, then he is told to sit in Blue Chairs and nurse will come to him for his bloods, 1/2 hr later someone shouts his name and says he has to go to blood room, so get a number for line bloods but they have an emergency going on so long wait. I know at this point that today will be a long hard one.
Eventually they do his bloods and then back to the Blue Chairs - on the monitor it says doc is on time, look at watch and laugh as doc is already running an hour and half late. So we wait and it clicks that hubby will be last in because the doc will want blood results. Eventually after two cups of tea we are called in to the little rooms - the room is soo hot today, unusual - the doc arrives and asks all the usual questions, how are you feeling, you look unwell, has it hit you hard this time etc Then he tells us he is running late for his afternoon clinic and hubbys bloods are not back in full, his FBC is back and hubby is aneamic, do you want a transfusion is the next question but as per usual hubby says he will be ok without and will feel better soon. The important results are not in so the doc says hubby will be going on dactinimycine two weekly, or so he thinks, he says he will have to wait on AFP result coming back. Hubby asks will it be back today and if so could the doc call us with the results - this is the one thing we went there for today, the one we are worrying about - doc says maybe but would be better to wait until next week. So after all that we leave the hospital none the wiser and will have to endure the weekend worrying and yet not saying anything to upset each other.
Oh what a life we lead!!
To top it all hubbys employer was supposed to be in touch by today to decide hubbys fate with them but that didn't happen either. The Ombudsman was supposed to be in touch this week over issue we have with HMRC but again it did not happen. Sometimes I just want to scream at these people - they may have time to waste, they don't have to worry about these things on top of the cancer, it would just be nice for someone to do as they say they will.But if I expected something more from them then I would be a fool. Its life but not as we know it !
Catch you all soon
Rayxxx
