Hubby eventually got liquid meds today after me banging on about it for two weeks so with a bit of luck he will start to feel better.
He is supposed to go for follow up on Friday but doesn't feel strong enough yet so I must speak to his doc tomorrow and hopefully he will understand. think hubby is a liitle worried that the doc will want to start the next lot of chemo so soon, but another week will not hurt, he needs time to get some strength.
He has lost all the muscles from his arms and legs - the last time he was like this was after the stem cell transplant but at least then he got time to recover.
Was so sad seeing him the other night, he cried like a baby, he is so tired with it all. All these years of treatments are starting to take its toll. I also found the strength to question why his mac nurse had not been near him in nearly a year and hopefully someone will sort out some support for him. The lady I spoke to seemed to understand - sometimes it feels like because we have done it so many times for so many years that it is assumed we are coping. Yes we know how to get on with the treatments and side effects but it does not get any easier on the mind or body.
i have here to let off steam but this is not hubbys thing so he has no one to listen to him. Sometimes it is so hard for him because he does not want to burden me with all his fears but he then only burdens himself.
Oh well, off to bed to try and get more than an hours sleep. catch u soon.
Rayxxx
