seeing my son today.....

1 minute read time.

What I saw today will haunt me for life...my son, lying on a hospital bed, with tubes everywhere-he's on a bypass machine; something else is BREATHING for my son! He's 'paralised' from a 'drug induced coma', got something breathing for him, has got a  tube in neck, with about 6 attachments, tubes down throat, tummy, arms. A catheter. Something to aspirate the green fluids oin his tummy!!! Jeez..... Machine is doing everything for him, doing everything for him!!!!

My son had his eyes taped shut. He's not blinking-as he's in an induced coma, has septacemia, is neutropenic.....in intensive care at LOndon hosp, ( initially he was taken to our local hospital-they took him, after hours of trying to 'stabilise' him, so he could travel to London' today-he left about 7pm-ish in ambulance)I passed my hand holding his, to my mum....she'll be with him ") 

I have had to come home, I couldn't 'follow', as ambulance had blue lights on-....I'll be visiting him, up at london again, on ITU ward this time-there must be a cancer ITU, tomorrow. (Monday 21st march)... 

I suppose he's in the best hands, & he'll get one to one nursing...I wish I'd called the ambulance lastnight, when the shaking/cold started-8pm-ish-he was sick all night-plus bad guts, bad output from them!

Honstly, my son was the definition of 'tubes everywhere. He only had his hickman line taken out last Monday-now he's got one in his neck, looks like they had to cut  the skin to get to veins...it was awful.

My poor son, (I feel so much for him)- I was told by 3 different people at the hospital that "my son is very ill"....one doc even said X happening, could be a sign of his body 'closing down'.

I remain positive for my son-& pray to God, they can 'control' this infection...If he remain's like this for a while, I'm going to just stay up with him, sleep on chair if needs be. My bruv will 'look after my dog'-phew, good ol bruv-I've asked him already, so dog really is 'sorted'.

I pray that 'god' see's him through all this, & is with him all the time, healing his 'special' worn body.....& my mum/dad/angels, his angels-everyone!

My poor boy-he's 22 in june-was 19 when this disease was diagnosed-it's 'robbed so much of his life already-I pray he beats it now, at the last hurdle!

                                      

Anonymous
  • FormerMember
    FormerMember

    My heart goes out to you both, in my thoughts and prayers,

    hugs n love Jenny xx

  • So sorry your son is having to go through this trauma. Seeing him like that is bound to be very hard for you too. Mums always want to protect their 'babies' however old they are and it must be difficult for you to hand him over to the care of strangers. However, these people have the skills and knowledge to give him the best possible chance.

    KateG

  • FormerMember
    FormerMember

    I've just read your post, oh you poor thing, I know exactly how you must be feeling - I saw my own 24 year old boy lying in ICU last year with tubes everywhere.  The feeling of not having any control over his condition, or being able to help is terrifying.

    And I can remember every little detail of that time as clearly as if it happened yesterday.  And no, the picture has NEVER left my mind.

    You go on to a sort of auto-pilot, which is good in a way, life revolves around that hospital bed, so you keep going.  I'm sure the hospital will help him on the road to recovery, will be thinking of you,  Jeanie x  ,

  • FormerMember
    FormerMember

    i'm so shocked to read about your son - i only caught up on your profile page a few days ago and read feb - that he was doing so well (i felt so happy for you when i read that) today my heart is breaking for you .................  my thoughts and prayers are with you and your son today

    xNx

  • FormerMember
    FormerMember

    I'm so sorry to read of your son's condition, a worry for you too being unable to do anything.

    I hope you see an improvement every day you visit him.

    Stay strong.