Feeling so confused - and I don't understand why????

No your not an idiot, you are being realistic. Enjoy the time you have now to the fullest,stop worrying what IF , yes you could have a relapse and then again you might not. Stick with the treatment you are having it seems to have put you in remission for a time. So stop making yourself ill by worrying all the time. Go out and enjoy life while you can. The day might come when you cant. If and when that day comes and I hope it wont be for a while. You will cope just like the rest of us on the site. All the

best and Good Luck.

Take care and be safe Sarsfield.

Hiya Honey

My heart goes out to you, big hugs to a scared mac-friend, never an idiot.

Have you spoken to your local hospice? I found them really useful.

I'm in a similar situation, my sarcoma has returned as multiple mets on the liver, which is incurable but not yet deemed terminal. However I am having chemo with a view to controlling the spread and maybe reducing the liver mets.

I have a very supportive GP and she arranged for someone from the local hospice to visit. My husband was so upset he had to go out and he won't acknowledge the possibility that I may go before him. The nurse from the hospice explained the services they offer, some of the options that would be available to me as/when the time comes and she is arranging counselling.

You are so right, nobody wants to discuss the possibility of a return and they think we are so brave, as if we have a choice in this.

Please pm me if you want to chat any time

much love and gentle hugs

Sharry xx

Hi hun, my advice to you would be to make sure you have all your affairs in order and then go and enjoy your life. I am not yet classed terminal but I am getting there and I live every day my lovely and do the things that I want to do. I know what will happen to me eventually but life is for living now hun. Sending a hug...love Carol x

First thing , U R NOT AN IDIOT! When we have a terminal prognosis we all do the same PANIC!  I was told 54 months ago that I had 18 months to live. Shocked , sure was , I got totally blottoed for the first year! Scared  that I might wake up crippled or incapable of looking after myself. Now I feel good , Im glad that I still feel well enough to try and enjoy every day. Ok , one day things will get worse , but I will cross that bridge when its before me , Today , I live my life for today , when I wake up in the mornin , I can still walk talk and be happy ,I guess what I am trying to say is , dont believe yous Drs prognosis , they just dont know how long u have . Try to live the life you have today , tomorrow never comes ! xxxxx!

I agree life is for living but I know how difficult it is to forget your diagnosis even for a little while. I am not terminal yet but the likelihood is that I will be one day. How soon I don't know and I feel just the same as you. But i won't live my life to someone else's timetable when they don't even know for certain what will happen.

Try to enjoy what you have ,that goes for us all.

Love Jen XX