Longest week of waiting

2 minute read time.

Hello everyone,

I hope you are all fighting fit and have had a good week.

For me the week so far has been a bit of a roller coaster of emocions, firstly horrified that the 'C' word was now being directed at little ol me! having always assosiated it with family members and friends who have previously gone down the same journey, and who i have had the pleasure of being helpful to, but now it is me that is the patiant, how do i handle that!

Then there was the thought of an operation to remove it (TURBT) which i had no worries with apart from the fact that any op is a worry, then to be told after 6 hours in the waiting room that there was not a bed available ! was to say the very least unbelivable, and this made me feel like i didnt matter and was worthless, and that once again i was being trodden down by the mouthy, uncooth, arrogant, obnoxious,  people who were making so much fuss about having to wait, while i am there just passing the time, being quiet minding my own business.  The poor nurse who has to come and tell you this devastating news of course is going to pick where possible the least ferocious looking candidate, which is usually probably me!

So another week to wait on top of the further 2 weeks of waiting for the results, plus family who have flown in to help me after the op from around the country now standing idly by just as worried as myself, wondering what they can do to make the week pass quickly.

For some light releif sunday morning i went for a ride on my motorcycle (KTM990 Adventure) had breakfast with my mates at Cowfold and then went to watch the final round of the british trails championship at Cowden, something i had wanted to do for some years but never got round to it, had a fantastic day did 200 miles on the bike in all, which has breathed some fresh air into my lungs and given renewed hope and drive for the coming events good or bad.

Once again i am waffling on, and once again a sleepless night, one thing i have found out, that night time telly is far better than evening viewing although you have to be prepared to miss bits here and there when you nodd off now and then!.

Oh well a new day dawns full of excitement and worry in equal doses i expect, should i tax the car for a full year or will 6 months surffice? ummm!      

 i wonder.........

Have a good day and a better week, thinking of you all, take care.

Pauli. 

Anonymous
  • FormerMember
    FormerMember

    Hi Pauli, sorry to hear about your op mate, I know more waiting. Oh someone else with a motor bike, I have an XJR1300, that is my baby, though I haven't ridden it this year, need to be a little stronger to hold it up!!!! I hope you get your op asap and that all goes well for you love, I know it ill. You take care of yourself...love Carol x

  • Hi Carol, ah great you have a bike too! thats cool, yes i have been biker since age 11 off road and on road since 1970 got knocked off last month but luckily only minor damage to bike and none to me.

    maybe we can talk bikes sometime if you would like that.

    Yes its not good to be cancelled, but its not the end of the world so i should just be thankful that we actually have a hospital that will eventually when they get their act together have a look at me, what happens to the people in 3rd world countries when they get ill, they must surely have the same illnesses that we do, i suppose they just pass on with no help at all, so we should be thankful for what we have.

    All my family and many friends are being great and very supportive at the moment, which is heartening, and the wait has given me a bit of time to come to terms with how i am going to handle it and myself during this unknown journey of discovery!

    I had a long chat yesterday with two family friends who are just recovering from bowl cancer operations and their positivity has encouraged me no end, so for now i will treat it as one of lifes inconvieniances to be negosiated around, rather than the end of my world.

    No doubt i will have down days and up days, today anyway looks like it might be an up day, lets go and makeover the garden, something that has needed doing for months.

    I hope you are doing well and not having to many problems, catch you again,

    Take care,

    Pauli..........

  • FormerMember
    FormerMember

    I'd suggest a year and good luck with your op'. My uncle received his phone call last night to go into hospital and with any luck he's first on the list this morning, so good luck and fingers crossed to Pauli and my Uncle Alb.

  • hi sawatdee,

    Nice one wish your uncle good luck from me, i hope it goes well for him, and it sounds like he has you on his side for afterwards.

    I went for 6 months in the end, i want a new car after that!

    keep in touch.

    Pauli.........

  • FormerMember
    FormerMember

    My Uncle was taken down to theatre on Tuesday morning, next thing it's called off, they found an infection somewhere and can't operate until that's cleared up.

    He's Still in hospital and now and will have to wait for them to call him back in at a later date for his op'.

    I had a bit of good news today, just been awarded high rate for DLA so that is really going to help and I start my chemo this month (possibly not good news with the chemo bit). Not looking forward to the side effects but the sooner that starts, the sooner I will feel better.

    Any news on your reschedule yet?

    It's the anxiety of the waiting for tests, treatment and the outcome that does my head in. Your procedure being postponed has just added to your anguish no doubt? I hope they can get on top of it soon and offer you the treatment you deserve.

    Unfortunately I'm the one that sits in the corner and wouldn't say boo to a ghost! I know the sort of people you mean, they're everywhere unfortunately.

    Any how, good luck with your treatment and recovery and look forward to hearing some good news from you.

    Sawatdee...