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Hope yr all well & had a good weekend
There said it funny how my family & friends never say that to me anymore, diagnosed with mouth cancer 8 weeks ago had surgery to remove it along with half my cheek 19th march but am already feeling ivisible around them (its like HELLO i have cancer i'm not invisible ) i still have a life to live they cant offer enough help but they foget im still me :( having learnt friday that cancer was also in my lymph nodes (thankfully removed but 1 broke off) i am waiting for radio & chemo therapy to start having mask fitted tuesday so should be next week im told , i just want to feel normal is this strange !!!!! Being asked if i had a good weekend isnt that strange is it ?????
P x
FormerMember
hope you had a lovely weekend. family dont mean it honestly, they probably think that your going through so much, you cant be having a nice time, i think family also dont realise the important of NORMALITY. mine didnt at first so i told them all, they tried to wrap me up in cotton wool and were hyper-sensitive about everything, they calmed down an are fantastic now, tell them how you feel, they are hurting too and feel helpless. its normal to want to feel normal, please talk to them they will understand. good luck with everything. liz x
I hope you had a marvellous weekend dearie! Liz is so right, loved ones just sometimes have no idea how to react. The best thing you can do is tell them how you are feeling. If you are feeling good despite treatment than crack a funny, make them laugh...they will soon see the same old Paula shining through...sometimes you just need to jog their memory!! Keep smiling hon...I'd say just carry on normally but hey...what the heck is normal????
If you want a laugh and some comfort come join us in chat!!
Sometimes it seems harder on the family than you actually going through the treatment - as they don't really know their roles. Your role is quite simple - fight it and get better but they just worry and cannot really act on anything. As Liz and Indie chick suggest - tell them how you feel. It will make it easier for you too.
Hope you had a cracker of a weekend - good luck with your face mask fitting - they told me to treat it like a facial - a warm feeling over the face! Not sure if that helped or not but I was terrified but got through it fine.
Wishing you all the best for a good weekend after this week too - and hey - who really wants to be normal?
Thanks for comments made me feel better, guess its just as hard for them selfish part of me cant get used to that side (didnt no i had a selfish side) Been up all night worried about mask fitting etc unlike me to worry guess its hitting home now b4 i was thinking surgery be uncomfortable for a while then this ordeal will be over, SO NOT TRUE as is for most of us i guess - everything seems to hurt feeding tube in tummy hurts (mind it hasnt stoppedsince they put it in) on the brighter side least i wont have to wait much longer b4 treatment starts ots the waiting i dont llike
good luck Paula and give family some time to get their heads around it. Also you need time too to get used to what has happened. I don't want to frighten you, but its worth chatting to the people who are going to make the mould for the mask about having a tranquiliser. I didnt know to do this and regret not having had that opportunity of being "chilled out". I have my mask of stillness painted red and use it as a piece of wall art. Some masks are different, depending on which part of the head is being radiated. My "mask of stillness" turned out to be thick perspex, so looks good painted lol. I would add i am slilghtly claustrophobic, which didn't help.
